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EIN 33-0879421

National Spasmodic Torticollis Assn

IRS 501(c) type
501(c)(3)
Num. employees
2
City
Fountain Valley
State
California
Year formed
2012
Most recent tax filings
2022-09-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
The mission of the NSTA is to support the needs and well being of affected individuals and families;to promote awareness and education; to advance research for more treatments and ultimately a cure.
Also known as...
National Spasmodic Torticollis Association
Total revenues
$411,670
2022
Total expenses
$183,502
2022
Total assets
$146,673
2022
Num. employees
2
2022

Program areas at National Spasmodic Torticollis Assn

People who receive the ST Quarterly magazine use it as a continuous source of up-to-date information regarding spasmodic torticollis. From the information they learn through the articles written by medical professionals and people inflicted with ST, they are able to communicate clearly with the medical professionals involved with their healthcare. In addition to information, readers are using the magazine as a source of emotional support. They take comfort knowing there are people who understand what they are going through and there is a place to contact if they should ever need information or support.
Provided email support to people inquiring information on spasmodic torticollis. Provide information on YouTube, Facebook, & NSTA website about the condition.
Research

Who funds National Spasmodic Torticollis Assn

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Allergan FoundationDaily Life Adjustment Tips and Webinar$15,000
Abbvie FoundationGeneral Mission$10,000

Personnel at National Spasmodic Torticollis Assn

NameTitleCompensation
Justin AquinesExecutive Director$0
Diane TruongVice President Secretary / Officer$0
Mark LedouxChairman$0
Kenneth PriceTreasurer$0

Financials for National Spasmodic Torticollis Assn

RevenuesFYE 09/2022
Total grants, contributions, etc.$411,648
Program services$0
Investment income and dividends$22
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$411,670

Form 990s for National Spasmodic Torticollis Assn

Fiscal year endingDate received by IRSFormPDF link
2021-092021-12-09990View PDF
2020-092021-04-12990View PDF
2019-092020-06-26990View PDF
2018-092019-03-15990View PDF
2017-092018-05-14990View PDF
...and 9 more Form 990s
Data update history
May 12, 2023
Received grants
Identified 1 new grant, including a grant for $10,000 from Abbvie Foundation
August 10, 2022
Posted financials
Added Form 990 for fiscal year 2021
August 2, 2022
Received grants
Identified 1 new grant, including a grant for $15,000 from The Allergan Foundation
August 1, 2022
Posted financials
Added Form 990 for fiscal year 2020
May 2, 2021
Posted financials
Added Form 990 for fiscal year 2019
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchTax deductible donations
General information
Address
17151 Newhope St Ste 208
Fountain Valley, CA 92708
Metro area
Los Angeles-Long Beach-Anaheim, CA
Website URL
cdtorticollis.org/ 
IRS details
EIN
33-0879421
Fiscal year end
September
Taxreturn type
Form 990
Year formed
2012
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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