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Medical research alliances and advocates

There are 134 medical research advocates in the United States. Combined, these medical research advocates employ 366 people, earn more than $120 million in revenue each year, and have assets of $160 million.
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Job trends for Medical research advocates

Employees per organizationNumber of organizations
0
 
9
1-10
 
9
11-25
 
2
26-100
 
2
101 to 1,000
 
1
1,000+
 
0
Key takeaways for employment stats:

Sizes of medical research advocates

Revenues per organizationNumber of organizations
< $250k
 
16
$250k to $1M
 
6
$1M to $5M
 
6
$5M to $25M
 
3
$25M to $100M
 
1
$100M+
 
0
Key takeaways for revenue stats:

Directory of medical research advocates

Search within these nonprofits
1-10 of 134

National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD), organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
Revenue
$52.4m
Assets
$61.8m
Employees
91
EIN
13-3223946
IRS type
501(c)(3)

Interstitial Cystitis Association of America (ICA)

The Interstitial Cystitis Association (ICA), a nonprofit charity, advocates for research dedicated to a cure and better treatments, raises awareness, and is the key source for information on interstitial cystitis (IC), urgency, frequency and bladder pain.
Revenue
$770.5k
Assets
$327.9k
Employees
0
EIN
13-3292137
IRS type
501(c)(3)

National Hemophilia Foundation

The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Dedicated to finding better treatm...
Revenue
$22.4m
Assets
$29.8m
Employees
100
EIN
13-5641857
IRS type
501(c)(3)

National Psoriasis Foundation

The National Psoriasis Foundation provides people with Psoriasis and psoriatic arthritis the services they need to best manage their condition, while promoting research to find a cure. To drive efforts to cure psoriatic disease and improve the lives of ...
Revenue
$14.2m
Assets
$12.4m
Employees
90
EIN
93-0571472
IRS type
501(c)(3)

Sarcoma Foundation of America

Public awareness, advocacy and medical research funding for the development of novel therapies against sarcoma. Medical research funding for the development of novel therapies against sarcoma, public awareness, and advocacy. The mission of the sarcoma f...
Revenue
$2.9m
Assets
$6.5m
Employees
9
EIN
52-2275294
IRS type
501(c)(3)

Parent Project Muscular Dystrophy (PPMD)

Parent Project Muscular Dystrophy's mission is to end Duchenne. We accelerate research, raise our voices in Washington, demand optimal care for all young men, and educate the global community.
Revenue
$9.1m
Assets
$5.7m
Employees
24
EIN
31-1405490
IRS type
501(c)(3)

Pacific Neuroscience Institute Foundation

To fundamentally advance neuroscience clinical care through novel treatment approaches that optimize brain health and quality of life, to train the next generation of neuroscientists and clinicians, and to educate patients and the community at large on ...
Revenue
$3.0m
Assets
$5.5m
Employees
5
EIN
47-5552178
IRS type
501(c)(3)

Hydrocephalus Association (HA)

The Hydrocephalus Association serves as the primary nexus for research on hydrocephalus, a condition defined by an abnormal, excessive accumulation of cerebrospinal fluid (CSF) within the cavities of the brain.
Revenue
$4.6m
Assets
$3.0m
Employees
19
EIN
94-3000301
IRS type
501(c)(3)

American Brain Foundation

The American Brain Foundation supports vital research and education to discover causes, improved treatments, and cures for brain and other nervous system diseases. The American Brain Foundation is the central driving force behind bringing all neurologis...
Revenue
$2.5m
Assets
$11.3m
Employees
0
EIN
41-1717098
IRS type
501(c)(3)

National Tay-Sachs and Allied Diseases Association

The mission of the national-tay sachs & Allied Diseases Association is to lead the fight to treat and cure tay-sachs, canavan and related genetic Diseases and to support affected families and individuals in leading fuller lives. To detect, prevent and r...
Revenue
$1.1m
Assets
$1.6m
Employees
6
EIN
13-1912877
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990 or 990PF with the IRS. We exclude Form 990EZ and Postcard filers, which are high in number but very small in size. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "H01: Medical Research Alliances and Advocacy" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
Cause IQ is a website that helps companies grow, maintain, and serve their nonprofit clients, and helps nonprofits find additional foundation funding. Our data and tools help professionals prospect for nonprofits, research opportunities, benchmark their clients, and enrich existing information.
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