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Medical research alliances and advocates

There are 149medical research advocates in the United States. Combined, these medical research advocatesemploy 345 people, earn more than $114 million in revenue each year, and have assets of $176 million.
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Job trends for Medical research advocates

Employees per organizationNumber of organizations
0
8
1-10
9
11-25
2
26-100
3
101 to 1,000
0
1,000+
0
Key takeaways for employment stats:

Sizes of medical research advocates

Revenues per organizationNumber of organizations
< $250k
15
$250k to $1M
4
$1M to $5M
6
$5M to $25M
5
$25M to $100M
1
$100M+
0
Key takeaways for revenue stats:

Directory of medical research advocates

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1-20 of 149

National Organization for Rare Disorders (NORD)

National Organization for Rare Disorders (NORD), organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
Revenue
$42.8m
Assets
$52.8m
Employees
99
EIN
13-3223946
IRS type
501(c)(3)

National Psoriasis Foundation

The National Psoriasis Foundation provides people with Psoriasis and psoriatic arthritis the services they need to best manage their condition, while promoting research to find a cure.
Revenue
$12.7m
Assets
$16.0m
Employees
71
EIN
93-0571472
IRS type
501(c)(3)

National Hemophilia Foundation

The National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Dedicated to finding better treatmen...
Revenue
$21.5m
Assets
$38.8m
Employees
83
EIN
13-5641857
IRS type
501(c)(3)

American Brain Foundation

The American Brain Foundation believes that we will one day be able to live life without the brain diseases that now impact 1 of every 6 people-and it starts with funding research.
Revenue
$5.9m
Assets
$15.1m
Employees
8
EIN
41-1717098
IRS type
501(c)(3)

National Spasmodic Dysphonia Association

The National Spasmodic Dysphonia Association is dedicated to improving the lives of people affected by Spasmodic Dysphonia (laryngeal dystonia) and related voice conditions through research, education, awareness and support.
Revenue
$2.5m
Assets
$2.9m
Employees
3
EIN
38-2918042
IRS type
501(c)(3)

Parent Project Muscular Dystrophy (PPMD)

Parent Project Muscular Dystrophy's mission is to end Duchenne. We accelerate research, raise our voices in Washington, demand optimal care for all young men, and educate the global community.
Revenue
$9.6m
Assets
$7.1m
Employees
24
EIN
31-1405490
IRS type
501(c)(3)

Pacific Neuroscience Institute Foundation

To promote advances in Neuroscience clinical care and research through novel treatment approaches that optimize brain health and quality of life, to train the next generation of neuroscientists and clinicians, and to educate patients and the community at ....
Revenue
$7.0m
Assets
$7.8m
Employees
7
EIN
47-5552178
IRS type
501(c)(3)

Hydrocephalus Association (HA)

The Hydrocephalus Association serves as the primary nexus for research on hydrocephalus, a condition defined by an abnormal, excessive accumulation of cerebrospinal fluid (CSF) within the cavities of the brain.
Revenue
$3.2m
Assets
$2.8m
Employees
19
EIN
94-3000301
IRS type
501(c)(3)

National Tay-Sachs and Allied Diseases Association

The mission of the national-tay sachs & Allied Diseases Association is to lead the fight to treat and cure tay-sachs, canavan and related genetic Diseases and to support affected families and individuals in leading fuller lives. To detect, prevent and res...
Revenue
$1.3m
Assets
$2.7m
Employees
6
EIN
13-1912877
IRS type
501(c)(3)

The Sudc Foundation

To eliminate The tragedy of sudden unexpected and unexplained death in childhood ("Sudc"). A centralized resource for Sudc, The Foundation is dedicated to supporting grieving families by developing support and advocacy programs specific to their needs.
Revenue
$948.8k
Assets
$1.5m
Employees
8
EIN
46-5008779
IRS type
501(c)(3)

American Tinnitus Association (ATA)

Improving the lives of people with tinnitus and hyperacusis by providing hope of a quieter future through education, advocacy, and research toward a cure.
Revenue
$1.2m
Assets
$5.1m
Employees
3
EIN
93-0749558
IRS type
501(c)(3)

Get The Medications Right Institute

We bring critical stakeholders together, bound by the urgent need to optimize outcomes and reduce costs by getting the medications right.
Revenue
$1.2m
Assets
$509.0k
Employees
8
EIN
82-3466837
IRS type
501(c)(4)

The Chest Foundation

The CHEST Foundation champions lung health, developing resources and supporting grants for clinical research, community service, and patient education projects that advance the prevention, diagnosis and treatment of chest diseases.
Revenue
$1.3m
Assets
$21.4m
Employees
0
EIN
36-3286520
IRS type
501(c)(3)

Heal Helping Everyone Achieve Livability Foundation

Heal Helping Everyone Achieve Livability Foundation is a medical research alliances or advocate in Clifton HTS, PA that was founded in 2019.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-4660605
IRS type
501(c)(3)

Maryfunmi Foundation International

Maryfunmi Foundation International is a medical research alliances or advocate in Brooklyn, NY that was founded in 2021.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
85-2260534
IRS type
501(c)(3)

Young Genetic Stroke Alliance

Young Genetic Stroke Alliance is a medical research alliances or advocate in Boston, MA that was founded in 2020.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
83-2192678
IRS type
501(c)(3)

Hypertrophic Olivary Degeneration Association

Hypertrophic Olivary Degeneration Association is a medical research alliances or advocate in Gilbert, AZ that was founded in 2022.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
37-2021187
IRS type
501(c)(3)

More Than A Percentage

More Than A Percentage is a medical research alliances or advocate in Greenville, DE that was founded in 2018.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-2091673
IRS type
501(c)(3)

Physicians for Pots

Physicians for Pots is a medical research alliances or advocate in Media, PA that was founded in 2020.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
84-4001014
IRS type
501(c)(3)

Compassion Tree

Compassion Tree is a medical research alliances or advocate in Clinton, IL that was founded in 2017.
Revenue
N/A
Assets
N/A
Employees
N/A
EIN
82-1284363
IRS type
501(c)(3)
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Methodology: Cause IQ mines all tax-exempt organizations that file a Form 990, Form 990-EZ, or Form 990-PF with the IRS. We collect and aggregate this information from OCR'd paper taxreturns, XML e-file taxreturns, IRS-provided extract, the Business Master File, and Cause IQ secret sauce for data cleaning, categorization, classification, analytics, etc.
This category corresponds to the "H01: Medical Research Alliances and Advocacy" National Taxonomy of Exempt Entities (NTEE) code. Cause IQ determines NTEEs for organizations by its own internally-developed secret-sauce algorithms.
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