Data update history
August 2, 2025
Updated personnel
Identified 3 new personnel
June 3, 2025
Posted financials
Added Form 990 for fiscal year 2024
December 6, 2024
Posted financials
Added Form 990 for fiscal year 2023
November 27, 2024
Updated personnel
Identified 3 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Operates donor advised fundsConducts researchPartially liquidatedNational levelTax deductible donationsAccepts online donations
General information
- Address
- 911 Central Ave 161
- Albany, NY 12206
- Metro area
- Albany-Schenectady-Troy, NY
- County
- Albany County, NY
- Website URL
- xlhnetwork.org/Â
- Phone
- (518) 350-9541
IRS details
- EIN
- 20-2441942
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2005
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0238939
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2025-08-20
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