| Organization | Type | Location |
|---|---|---|
| Colorado Rare | 501(c)(3) | Westminster, CO |
| Louisiana Metabolic Disorders Coalition | 501(c)(3) | Mandeville, LA |
| Angels with Missing Pieces | 501(c)(3) | Blue Springs, MO |
| Prader-Willi Alliance of New York | 501(c)(3) | New York, NY |
| Tars Awareness Texas | 501(c)(3) | Mathis, TX |
| For Kinsleys Sake Sickle Cell Association of Texas | 501(c)(3) | Houston, TX |
| Prader-Willi Florida Association | 501(c)(3) | Tamarac, FL |
| Upside of Downs of Aiken | 501(c)(3) | Aiken, SC |
| North Central Kansas Down Syndrome Society | 501(c)(3) | Clyde, KS |
| Ability Empowerment of South Alabama | 501(c)(3) | Mobile, AL |
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