| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| The Children's Hospital of Philadelphia (CHOP) | Research | 2022-06 | $236,072 |
| Columbia University | Patient Registry | 2022-06 | $50,000 |
| Children's Hospital Los Angeles (CHLA) | Research | 2022-06 | $35,000 |
| ...and 1 more grant made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| American Online Giving Foundation | 2022-03 | General Support | $64,128 |
| Fidelity Investments Charitable Gift Fund | 2022-06 | For Grant Recipient's Exempt Purposes | $48,800 |
| Spartanburg County Foundation | 2021-12 | General Support | $25,000 |
| ...and 28 more grants received totalling $246,401 | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Brian T Harman | President and Chief Executive Officer | $179,442 | 2023-05-15 |
| Mark S Campbell | Chief Financial Officer | $115,032 | 2022-06-30 |
| Cliff Gorski | Director of Communications | 2020-11-10 | |
| Beth Whitehouse | Director of Development | $130,649 | 2022-06-30 |
| Kara Strittmatter | Ma and CMM Meeting and Event Director / Director Meetings and Event / Director - Meetings and Event | 2020-11-10 | |
| ...and 9 more key personnel | |||
| Revenues | FYE 06/2022 |
|---|---|
| Total grants, contributions, etc. | $2,374,396 |
| Program services | $401,193 |
| Investment income and dividends | $101,179 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $162,628 |
| Net income from fundraising events | $532,280 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $727 |
| Miscellaneous revenues | $0 |
| Total revenues | $3,572,403 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-06 | 2023-05-15 | 990 | View PDF |
| 2020-06 | 2021-05-11 | 990 | View PDF |
| 2019-06 | 2020-12-30 | 990 | View PDF |
| 2018-06 | 2019-06-19 | 990 | View PDF |
| 2017-06 | 2018-11-15 | 990 | View PDF |
| ...and 7 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| TSC Alliance | 501(c)(3) | Silver Spring, MD | $8,909,542 |
| Gbscidp Foundation International | 501(c)(3) | Conshohocken, PA | $4,358,358 |
| Alpha-1 Foundation Alpha One Foundation | 501(c)(3) | Miami, FL | $10,890,084 |
| Lupus Foundation of America | 501(c)(3) | Washington, DC | $15,023,543 |
| National Psoriasis Foundation | 501(c)(3) | Portland, OR | $13,390,353 |
| Cure HHT | 501(c)(3) | Monkton, MD | $2,377,085 |
| Pulmonary Hypertension Association | 501(c)(3) | Washington, DC | $6,905,835 |
| Zero - The End of Prostate Cancer | 501(c)(3) | Alexandria, VA | $10,066,484 |
| Cure Sma (CSMA) | 501(c)(3) | Elk Grove Village, IL | $15,022,219 |
| American Council of the Blind | 501(c)(3) | Alexandria, VA | $2,592,235 |
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