EIN 81-1260031

The Wiedemann-Steiner Syndrome Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
Year formed
2016
Most recent tax filings
2022-12-01
Description
The WSS Foundation educates and supports those affected by Wiedemann-Steiner Syndrome, fostering scientific research to improve lives.
Total revenues
$227,816
2022
Total expenses
$125,225
2022
Total assets
$647,196
2022
Num. employees
0
2022

Program areas at The Wiedemann-Steiner Syndrome Foundation

Expanded outreach through its family volunteers to serve as regional ambassadors and hosted several virtual activities to raise awareness of wss including The monthly expert virtual discussions to educate The wss community, annual wss triathlon (virtually), and international wss awareness day.
Organized and completed a $200,000 grant that was funded in 2020 to create a mouse prototype to advance The research of wss.
Raised awareness and support to initiate medical research on The wss gene by leveraging The existing scientific advisory board and nominated a rare genetic scientist to initiate The Foundation first study of wss.
Began to organize The infrastructure in order to commission a natural history study to support The completed research from accomplishment 3above

Who funds The Wiedemann-Steiner Syndrome Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
AmazonSmile FoundationGeneral Support$1,064

Personnel at The Wiedemann-Steiner Syndrome Foundation

NameTitleCompensation
Libby WoolfordPresident$0
Thor MiskoSecretary$0
Drew SchaeferTreasurer$0
Diego MahechaTreasurer / Board Member$0
Kirsten Stuart ResignedSecretary$0

Financials for The Wiedemann-Steiner Syndrome Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$225,335
Program services$0
Investment income and dividends$758
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$1,723
Total revenues$227,816

Form 990s for The Wiedemann-Steiner Syndrome Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-08-24990View PDF
2021-122022-05-31990View PDF
2020-122021-08-09990View PDF
2019-122020-10-08990View PDF
2018-122019-08-17990View PDF
Data update history
October 1, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 1, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 27, 2023
Posted financials
Added Form 990 for fiscal year 2020
June 27, 2023
Updated personnel
Identified 4 new personnel
May 22, 2023
Received grants
Identified 1 new grant, including a grant for $1,064 from AmazonSmile Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsOperates internationallyNational levelCommunity engagement / volunteeringTax deductible donationsNo full-time employees
General information
Address
1314 44th St
Sacramento, CA 95819
Metro area
Sacramento-Roseville-Folsom, CA
County
Sacramento County, CA
Website URL
wssfoundation.org/ 
Phone
(916) 502-2120
IRS details
EIN
81-1260031
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2016
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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