Program areas at The Sumaira Foundation
Grants to facilitate research for The treatment of neuromyelitis optica and myelin oligodendrocyte glycoprotein anitbody disease.
Organizing regional educational events featuring local experts to foster community, empowerment and support for nmosd/mogad patients, caregivers, clinicians and researchers.
Working to generate global awareness of neuromyelitis optica spectrum disorder (nmosd) and myelin oligodendrocyte glycoprotein anitbody disease (mogad), and creating a community of support for patients + their caregivers.
Grants made by The Sumaira Foundation
Who funds The Sumaira Foundation
Grants from foundations and other nonprofits
Personnel at The Sumaira Foundation
| Name | Title | Compensation | Date of data |
|---|
| Sumaira Ahmed | Founder and Chief Executive Officer | $307,193 | 2024-11-15 |
Financials for The Sumaira Foundation
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $1,839,292 | $1,481,066 | 24.2% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $7,667 | $0 | 999% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $-83,173 | $-12,971 | -541.2% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $-4,134 | $-10,404 | 60.3% |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $1,759,652 | $1,457,691 | 20.7% |
Organizations like The Sumaira Foundation
| Organization | Type | Location | Revenue |
|---|
| The Cure Starts Now | 501(c)(3) | Cincinnati, OH | $5,080,693 |
| Dysautonomia Foundation | 501(c)(3) | New York, NY | $1,215,749 |
| CURE Epilepsy (CURE) | 501(c)(3) | Chicago, IL | $6,183,163 |
| Cure Sanfilippo Foundation | 501(c)(3) | Columbia, SC | $2,106,392 |
| Northwest Parkinsons Foundation | 501(c)(3) | Mercer Island, WA | $752,246 |
| Dravet Syndrome Foundation | 501(c)(3) | Cherry Hill, NJ | $3,257,096 |
| Epilepsy Association | 501(c)(3) | Cleveland, OH | $652,080 |
| Rocky Mountain Multiple Sclerosis Center | 501(c)(3) | Westminster, CO | $2,965,751 |
| Race to Erase MS | 501(c)(3) | Los Angeles, CA | $1,172,662 |
| The Als Association - Greater New York Chapter | 501(c)(3) | New York, NY | $4,847,061 |
Data update history
January 26, 2025
Posted financials
Added Form 990 for fiscal year 2023
October 23, 2024
Received grants
Identified 1 new grant, including a grant for $10,000 from Dorchester Foundation May 1, 2024
Used new vendors
Identified 1 new vendor, including
February 1, 2024
Updated personnel
Identified 2 new personnel
January 6, 2024
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsOperates internationallyGala fundraisersTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 485 Foley St 631
- Somerville, MA 02145
- Metro area
- Boston-Cambridge-Newton, MA-NH
- County
- Middlesex County, MA
- Website URL
- sumairafoundation.org/Â
- Phone
- (617) 842-9282
IRS details
- EIN
- 47-2398246
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2014
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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