The Scleroderma Foundationsouthern of California

Support: provide patient support and education to over 1000 patients affected by Scleroderma in California we work to build overall awareness of The disease. The Foundation now has 26 community support groups. Most groups meet bi-monthly and have an average attendance of 25-20 people. In 2023 many of our support groups transitioned back to in-person meetings and we were able to grow to reach approximately 2000+ patients/caregivers and family members. We will continue to provide online meetings as well as in-person meetings. Support groups provide a forum to share feelings, concerns, information, as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings. Support groups often feature speakers specializing in Scleroderma or related topics. All support groups are free of charge and open to everyone, including patients, caregivers, family and friends.

Research:we continue to seek research projects to fund to find a cure to end Scleroderma.

Education:in 2023 The Scleroderma Foundation hosted an online education event for patients, family members and caregivers with The total number who benefitted approximately 500.for medical professionals to help them understand and properly diagnosis Scleroderma early, and for patients to help them and cope and thrive while living with Scleroderma.