Program areas at The Ryr-1 Foundation
Research grants - The Foundation makes grants to researchers interested in ryr-1-related diseases (ryr-1-rd). As The only organization solely dedicated to ryr-1-rd, we promote research in this area.
Research workshop - The patient-led international research workshop is devoted exclusively to ryr-1-related diseases. This workshop provide a much-needed forum for The leading international ryr-1-rd experts and a group of affected individuals to share knowledge, exchange ideas, form collaborations, and develop new strategies for finding therapies. The workshop organizing committee includes a diverse group of researchers/clinicians in ryr-1-rd, members of The Ryr-1 Foundation's sab, and ryr-1-rd community representatives.
Scientific advisory board - The scientifc advisory board is a group of The world's leading authorities in Ryr-1 related diseases. The sab determines The research priorities of The Ryr-1 Foundation.
Who funds The Ryr-1 Foundation
Grants from foundations and other nonprofits
Personnel at The Ryr-1 Foundation
| Name | Title | Compensation | Date of data |
|---|
| Lindsay Goldberg | Executive Director and Patient Liaison | $21,835 | 2024-04-09 |
| Patricia Raffaele, M.A., CAE | Development, Public Relations, and Research Director | | 2024-04-09 |
| Lena Leghart, BSW | Program Manager and Administrator | | 2024-04-09 |
| John Gallo | Past Executive Director | $41,150 | 2023-12-31 |
Financials for The Ryr-1 Foundation
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $522,621 | $320,129 | 63.3% |
| Program services | $0 | $66,606 | -100% |
| Investment income and dividends | $71,970 | $24,062 | 199.1% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $5,860 | $315 | 1760.3% |
| Total revenues | $600,451 | $411,112 | 46.1% |
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Data update history
January 12, 2025
Received grants
Identified 6 new grant, including a grant for $35,000 from Schooner Foundation January 3, 2025
Posted financials
Added Form 990 for fiscal year 2023
December 29, 2024
Updated personnel
Identified 3 new personnel
October 20, 2024
Received grants
Identified 5 new grant, including a grant for $10,000 from John MitchellJr Trust Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchPeer-to-peer fundraisingOperates internationallyFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- PO Box 13312
- Pittsburgh, PA 15243
- Metro area
- Pittsburgh, PA
- County
- Allegheny County, PA
- Website URL
- ryr1.org/Â
- Phone
- (412) 223-7236
IRS details
- EIN
- 47-1094057
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2014
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- H00: Medical Research: General
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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