| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| Thomas Jefferson University (TJU) | The Long Term Fate of Mda Progenitors Derived From En1-Tdtomato Hips Reporter Cell in A Rat Model of Parkinson's Disease. Funding for Patient and Caregiver Guides for the Parkinson's Pal Program A Novel Peer Mentorship Program, Led By A Group of Patient Leaders in Collaboration With Jefferson. | 2022-12 | $85,000 |
| Perelman School of Medicine at the University of Pennsylvania | Counseling - Continued Salary Support for Two Counselors Who Facilitate Support Groups. Social Worker - Funding Support for Social Worker for Newly Established Palliative Adult Children Care Partner Support Group. | 2022-12 | $60,000 |
| Cooper University Health Care | Salary Support for 1 Part-Time Social Worker To Serve Families Impacted By Parkinson's Disease in Southern New Jersey. | 2022-12 | $40,000 |
| ...and 8 more grants made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Joseph B and Evelyn Wolffe Foundation | 2022-12 | General | $100,000 |
| Davis Phinney Foundation | 2022-12 | Community Grant | $45,000 |
| Farber Family Foundation | 2022-12 | General | $20,000 |
| ...and 11 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Wendy Lewis | Chief Executive Officer / Executive Director | $86,444 | 2022-12-31 |
| Michael Johnson | Treasurer | $0 | 2023-11-08 |
| Erika Aaron | President / Board Member | $0 | 2022-12-31 |
| Erica Domingo | Vice President / Secretary - Current / Board Member | $0 | 2022-12-31 |
| Kristina Vivian | Past Treasurer | $0 | 2022-12-31 |
| ...and 5 more key personnel | |||
| Revenues | FYE 12/2022 |
|---|---|
| Total grants, contributions, etc. | $614,523 |
| Program services | $0 |
| Investment income and dividends | $114 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $614,637 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2022-12 | 2023-11-08 | 990 | View PDF |
| 2021-12 | 2022-11-10 | 990 | View PDF |
| 2020-12 | 2021-11-12 | 990 | View PDF |
| 2019-12 | 2021-02-19 | 990 | View PDF |
| 2018-12 | 2020-01-13 | 990 | View PDF |
| ...and 9 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Cloves Syndrome Community | 501(c)(3) | West Kennebunk, ME | $310,706 |
| National MPS Society | 501(c)(3) | Durham, NC | $1,837,186 |
| United MSD Foundation | 501(c)(3) | Ocean Springs, MS | $720,064 |
| The Amyloidosis Foundation | 501(c)(3) | Clarkston, MI | $710,435 |
| The NVLD Project | 501(c)(3) | New York, NY | $347,838 |
| Diabetes Empowerment International Foundation | 501(c)(3) | New York, NY | $290,305 |
| Gene Spotlight | 501(c)(3) | Miami Beach, FL | $475,304 |
| Parkinsons Unity Walk | 501(c)(3) | Kingston, NJ | $1,360,764 |
| Setebaid Services | 501(c)(3) | Winfield, PA | $820,823 |
| Diabetes Foundation | 501(c)(3) | Hackensack, NJ | $1,601,048 |
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