EIN 76-0585072

The Naspghan Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Year formed
1988
Most recent tax filings
2022-12-01
NTEE code, primary
Description
Naspghan Foundation funds and supports research and education to enhance children's health with gastrointestinal, liver, pancreas, and nutritional disorders.
Related structure
The Naspghan Foundation is a subordinate organization under North American Socfor Pediatric Gastro- Enterology Hepatology and Nutrition.
Also known as...
Childrens Digestive Health and Nutrition Foundation
Total revenues
$1,995,391
2022
Total expenses
$1,511,688
2022
Total assets
$6,677,645
2022
Num. employees
0
2022

Program areas at The Naspghan Foundation

Grants and awards:[1] naspghan/naspghan Foundation george ferry young investigatordevelopment award:- this two-year grant is available to junior faculty to supportresearch activities that have The potential for evolution to anindependent research career in pediatric gastroenterology, hepatologyor nutrition. Monies are awarded in support of a meritorious researchproject in The clinical or basic sciences to study The diseases of thegastrointestinal tract, liver or pancreas and nutritional disorders inchildren.see schedule o for continuations[2] Naspghan foundation/nestle nutrition research young investigatordevelopment award:- this two-year grant is available to junior faculty to supportresearch activities that have The potential for evolution to anindependent research career in pediatric gastroenterology, hepatologyor nutrition. This grant, generously supported by mead johnson, is awarded to support meritorious basic or clinical research project relating to nutrition in infancy, childhood or adolescence. [3] Naspghan foundation/takeda pharmaceuticals north america incresearch innovation award:- this grant is offered in odd numbered years. This grant will provide$75,000 annually for two years (total $150,000) for innovative,high-impact research in pediatric gastroenterology, hepatology andnutrition. The intent of this research award is to stimulatescientific inquiry in an area that is exceptionally innovative and hasthe potential to impact The field in a highly novel manner. Applicantsat any career level may apply. [4] Naspghan foundation/astrazeneca research in peptic ulcer diseases:- this grant will provide $75,000 annually for two years (total$150,000) for studies focused on The epidemiology, pathogenesis,natural history, genetics, diagnosis and management of peptic disordersand other diseases of The upper gastrointestinal tract in children.diseases that are relevant to this announcement include, but are notlimited to gastroesophageal reflux, reflux esophagitis, eosinophilic(allergic) esophagitis, motility disorders of The uppergastrointestinal tract, helicobacter pylori infection with or withoutulceration, non-ulcer dyspepsia, and non-bacterial ulcer diseases.applicants at any career level may apply. [5] Naspghan Foundation mid-level career development award - thismid-level career development award is for Naspghan members pursuingresearch in pediatric gastroenterology, hepatology and nutrition andare at a mid-level in their career. Mid-level is defined as a facultymember who has held a faculty appointment for at least 6 years at thetime of The application, but has not yet reached professor level. Thisaward will provide up to $100,000 in direct funding for 2 years($50,000 per year) for The advancement of research careers forapplicants with significant promise in their mid-years as faculty. Theproposal must include a focused area of research that will directlyenhance The applicant's ability to achieve further nationalpeer-reviewed research funding and result in significant impact ongastrointestinal, nutrition and liver health in children. Basic,clinical, translational, epidemiologic, dissemination andimplementation research are all encouraged. This award is to fostereither a new area of enquiry or to provide pilot data in an ongoingarea of research with substantial potential for new funding. [6] Naspghan foundation/apgnn susan moyer nursing research grant - thisone-year grant is available to pediatric gastroenterology, nutritionand hepatology nurses to support research activities that have thepotential to advance nursing care of patients and families of childrenwith gastrointestinal, hepatobiliary, pancreatic or nutritionaldisorders. Monies are awarded in support of a meritorious researchprojects to study The nursing care of families and children withpediatric gastrointestinal, hepatobiliary, pancreatic or nutritionaldisorders. [7] Naspghan foundation/abbott nutrition advanced fellowship trainingin pediatric nutrition - The award is expected to begin on july 1 ofeach academic term although alternate start dates will be considered toaccommodate non-traditional academic schedules. Pediatric nutrition isone of The fastest growing areas of scientific and clinical importanceto child and population health. To address this growing interest andto accelerate The training of pediatric experts, The naspghanfoundation has partnered with abbott nutrition to develop a pathway foradvanced fellowship training in pediatric nutrition.the Naspghan foundation/abbott nutrition advanced fellowship innutrition will provide up to $75,000 in direct funding to support oneyear of advanced training in pediatric nutrition for a Naspghan member.applicants are expected to identify a mentor and a host nutritionresearch program prior to application for funding. The fellowship mustinclude a well-defined clinical experience as well as a focusedresearch project. Examples of areas for emphasis include but are notlimited to: fetal growth and neonatal nutrition, typical development offeeding skills/behaviors and feeding disorders; nutritional aspects ofeating disorders such as anorexia nervosa and bulimia; malnutrition andfailure to thrive; nutrition education; nutrition in specific systemicdiseases or clinical states such as cystic fibrosis, liver disease,intestinal failure, and organ transplantation; nutrition support;community nutrition; nutrition epidemiology; energy homeostasis;nutrition and The microbiome; micronutrient homeostasis; nutrigenomics;obesity; breast milk and breast feeding; and basic laboratorynutritional science. The primary objective of The fellowship is tocatalyze and increase The number of highly-trained, expert nutritionclinicians, educators and scientists among The membership of naspghan,as a means to improve service to our patients and The public. [8] Naspghan Foundation innovations in clinical care grant - The aim ofthis grant is to encourage and support The development of innovativeapproaches to optimize The quality of care and health care delivery tochildren with digestive diseases by The clinically focused pediatricgastroenterologist. The Foundation will award up to two grants, eachranging from $2,000 to $5,000 for a one-year period. Selection criteriainclude potential impact of The project on patient care and theapplicability of The project to The general Naspghan community.clinically oriented physicians are strongly encouraged to apply. [9] Naspghan foundation/qol research award for The study of disordersassociated with carbohydrate malabsorption - this award will provide$75,000 annualy for two years (total $150,000) for studies focused ondisorders of carbohydrate (cho) maldigestion/malabsorption in children.relevant conditions include, but are not limited to lactoseintolerance, congenital sucrose-isomaltase deficiency, diseases leadingto intestinal epithelial cell dysfunction, sibo, or inflammatoryconditions affecting cho absorption. Applicants at any career level mayapply. [10] Naspghan foundation/cpnp nutrition research grant - this one-yeargrant is available to pediatric dietitians to support researchactivities that have The potential to advance The nutrition care ofpatients and families of children with nutritional disorders. Thenaspghan Foundation will award grants ranging from $500 to $5,000 forone year.
Webinars and on-demand educational modulesegids: beyond The esophagusegids are a collection of chronic inflammatory diseases including eosinophilic esophagitis (eoe), eosinophilic gastritis (eg) eosinophilic gastroenteritis (ege), and eosinophilic colitis (ec). Among The egids, eoe has become an increasingly recognized and studied condition. Validated metrics have been established to quantify quality of life, symptoms, histologic and endoscopic findings. In addition, there are well-established, effective treatments. The same cannot be said for eg, ege, or ec, which lacks well established histologic criteria for diagnosis, and has a more unclear natural history, nor well-established treatments. Egids: beyond The esophagus brings to light The latest on non-eoe egid, including The signs and symptoms; The criteria to make a diagnosis; what options exist for therapy, and The potential mechanisms of disease. Practical tips in The nutritional management of children with cholestatic liver disorders: a webinar for patients, families and caregiversthis webinar explores practical approaches to The nutritional management of children with cholestatic liver diseases, with special tips for patients and caregivers. Participants learn The clinical presentation and long-term implications of malnutrition and fat-soluble vitamin deficiencies in children with cholestatic liver disorders, become acquainted with differences among The currently available formulation to support nutrition in cholestatic babies, and The currently available vitamin supplements and formulations. The lack of insurance coverage for medical food and vitamins is also discussed.
Educational campaigns:the Foundation supports The educational mission of Naspghan through adiverse portfolio of professional and public education initiatives.topic areas are reflux and gerd, inflammatory bowel disease, celiacdisease and gluten-related disorders, constipation, eosinophilicesophagitis, nutrition, endoscopy, and nonalcoholic fatty liver diseasein children, adolescents and young adults. The Foundation's goal is toeducate medical professionals and The public, and to support thedevelopment of new research in these areas. The primary objectives areto improve The quality of life and to change pediatric and adult healthoutcomes by early detection and intervention.gikids is The patient outreach and education effort of Naspghan. Withgikids, Naspghan and The Foundation are working to reach out directlyto families, kids and teens who live with digestive conditions toprovide them with The information they need to:-understand and improve their digestive health-work with their health care providers-live a more independent life-understand what works in plain language"a practical approach to nutritional management of children with cholestatic liver diseases: tips for patients and caregivers" webinar and on demand programchildren with cholestatic liver diseases have unique nutritional requirements. Objectives: 1.overview of The clinical presentation and long-term implications of malnutrition and fat-soluble vitamin deficiencies in children with cholestatic liver disorders.2.review current available formulation and practical tips for The care provider.3.review The currently available vitamin supplements, formulations and discussion 4.discuss lack of insurance cover for medical food, vitamins and financial burden to The families.hepatitis c slide set and grand roundshcv infection is children is frequently unrecognized. Recently proposed universal testing strategies during pregnancy need to be implemented. Although liver disease is generally mild in children, chronic hepatitis and cirrhosis occurs. Direct active antivirals are very efficacious and safe. Therefore, all hcv infected children > 3 years of age should be considered for treatment. Public and professional education is critically important to increase hcv awareness. The Foundation developed a slide deck and grand rounds program to increase awareness regarding testing and management of hcv. "nutrition and liver disease in peroxisomal biogenesis disorders: diagnosis and management" Naspghan nutrition university (n2u)this course is designed to provide specialized nutrition education inareas associated with The practice of pediatric gastroenterology andnutrition to 3rd year fellows, junior faculty and dietitians. Ittargets two groups: candidates who received minimal nutrition educationduring their fellowship or whom plan to pursue pediatric nutrition astheir career focus.teaching and tomorrow underrepresented in medicine (urim) programthe pediatric gi teaching and tomorrow program of Naspghan strives to attract The brightest residents to subspecialty training in pediatric gastroenterology, hepatology and nutrition. Due to The excellent interest in this innovative Naspghan program, we have seen continual growth in The interest and applications to gi training programs through The years. This program has been recently expanded to provide scholarships to interested 1st and 2nd year pediatric residents and 4th year medical students who self-identify as underrepresented in medicine (urim). In addition to networking with other participants while attending The program's scheduled sessions, The urim program attendees are matched up with a Naspghan fellow and/or attending physician (a teaching and tomorrow program alumnus) who serves as a point of contact and ambassador to The annual meeting. We were able to support 5 students in 2022 and 17 in 2023.urim naspghan/naspghan Foundation medical student mentored summer research programthe urim naspghan/naspghan Foundation medical student mentored summer research program takes place at multiple sites throughout The u.s. and canada and provides medical students who self-identify as urim with a 10-week research experience under The mentorship of basic or clinical scientists with a research focus in pediatric gastroenterology, hepatology, or nutrition. Candidates for these scholarships must have completed at minimum their first year of medical training and be in good standing at accredited medical schools in The u.s. and canada. Preference is given to students who are seeking a research experience between The first and second years of medical school, though applications from all currently enrolled students are considered. These students are also invited to attend The annual meeting, present a poster of their project and participate in The teaching and tomorrow program. We were able to support 4 students in 2022 and 4 students in 2023.educationthe Foundation supports The educational mission of Naspghan through a diverse portfolio of professional and public education initiatives. The Foundation's goal is to educate medical professionals and The public, and to support The development of new knowledge through research. The primary objectives are to improve The quality of life and to improve health outcomes through education, early detection and evidence-based care.educational resources
Children with cholestatic liver disease: diagnosticscholestatic jaundice is a rare presentation of various hepatobiliary, metabolic, and genetic disorders. Cholestasis typically presents in The neonatal/infantile period but can also present late in older children or even adults. Early diagnosis and appropriate management of The underlying condition are of paramount importance for optimal prognosis. Diagnosis of cholestasis needs an array of investigations including blood tests, imaging, genetic testing, and invasive procedures like liver biopsy. Liver biopsy is one of The central crucial investigations done in evaluating children with cholestasis, however, can be associated with complications including bleeding. Understanding when to use a liver biopsy in children with cholestasis along with its limitations is extremely important to gain The maximum benefit out of an invasive procedure. Over The last decade, The growth in genetic techniques and The identification of new genes leading to cholestasis in children have evolved significantly and have led to The shrinking of The unidentified etiologies. This webinar addresses The rapidly evolving field of genetic cholestasis and when to perform a liver biopsy, its utility, and limitations. Medical management of chronic pancreatitis in children: maximizing treatment and improving outcomeschronic pancreatitis (cp) in children is associated with significant morbidity and poor quality of life. The incidence of cp in children has risen over The past few decades and is approaching that seen in The adult population. Cp is an inflammatory disease resulting in irreversible changes in The pancreas including acinar cell loss, fibrosis, ductal changes, and calcifications. Patients with cp may suffer from abdominal pain and complications of exocrine pancreatic insufficiency (epi) and diabetes mellitus. Medical management of chronic pancreatitis in children: maximizing treatment and improving outcomes brings together leading experts to discuss how to ensure that childhood cp is recognized early and its sequalae treated promptly.
Removing dieting from diet therapies in pediatric giobesity was declared an epidemic by The cdc in The 1990s, yet significant and sustained weight loss continues to be problematic for americans as a population. Critical factors are often overlooked when addressing obesity such as racial discrimination, disability status, and environmental factors. In conjunction, "weight stigma", or bias that devalues people with larger bodies, can cause increased morbidity and mortality, independent of bmi. As a response, a movement is taking place, known by several names including "anti-diet or "intuitive eating". This is an inclusive movement that recognizes one's size as part of his or her identity as much as race, national origin, and sexuality. It considers social, economic, and physical barriers to obesity, rather than assuming lack of willpower or education are The cause. It's about recognizing "diet culture and dismantling The anti-fat and pro-thin messages that infiltrate society. This informative and interactive webinar helps healthcare providers recognize weight stigma and promote a positive relationship with food, particularly in patients with gi-related health conditions and those following therapeutic diets.
The what, how and ifs of optimizing early childhood growth and long-term outcomes: part oneunderstanding normal growth and development is critically essential for quick recognition and intervention for deviations in childhood growth and nutrient intake practices associated with increased risk for disease and poor long-term health. Nutrient and non-nutrient factors influence health outcomes throughout The lifecycle. This webinar and podcast series, The what, how and ifs of optimizing early childhood growth and long-term outcomes discusses how to implement nutrient and non-nutrient factors that optimize long-term health, recognize childhood growth and nutrient intake patterns associated with disease, childhood microbiome and long-term risk for disease, and early diagnosis and management strategies for childhood feeding disorders.the what, how and ifs of optimizing early childhood growth and long-term outcomes: part twounderstanding normal childhood growth is essential for quick recognition and intervention for deviations in growth and nutrient intake associated with long-term risk for disease and poor health. Therefore, The 'what, how, and ifs of optimizing childhood growth and long-term outcomes' webinar series addresses The knowledge and practice gaps about nutrient and non-nutrient factors essential for optimizing long-term health outcomes. The first webinar addresses The early life nutritional factors that promote healthy growth, The development of a microbiome associated with optimized long-term health, and The recognition of early childhood growth patterns related to long-term risk for overweight and obesity. This part two webinar focuses on a nutritional assessment approach that quickly recognizes disease, nutritional management of childhood feeding disorders, and principles and strategies for weaning children from dependence on tube feeds.children with cholestatic liver disease: pruritis managementpruritus is a common complication of cholestatic liver disease that can significantly impair quality of life. Intractable pruritus is an indication for liver transplant regardless of peld/meld score. The pathophysiology of pruritus is complex. Several medications serve as standards for treatment and recent advances in quantification has allowed for rigorous and controlled study of new medications. In certain circumstances, liver transplant can be avoided or delayed with surgical biliary intervention.naspghan fellows toolbox websitethe Naspghan toolbox website is designed to deliver pediatric gastroenterology information to care providers in a format that is user friendly. The toolbox provides easy access to clinical guidelines for pediatric gastroenterologists and trainees and is now available as a distinct website linked from The Naspghan website. Features of The toolbox include algorithms to navigate clinical guidelines for various diseases; high quality images of gi pathology; helpful tables on managing nutritional needs; scores and calculators to assist in calculating important pediatric gi scores; and a convenient search feature.junior faculty conference (december 2022)naspghan and The Naspghan organized a stand-alone conference devoted to The career and professional development of our members at a junior level in their professional career; i.e. 2 to 7 years out of fellowship training. This conference addresses ongoing professional development for members at The junior level of their career, continue to nurture and augment existing and new professional relationships and collaboration, and cover such topics as expanding self-awareness and personal leadership styles, improving communication, diversity and inclusion, increasing financial acumen and strategic planning, negotiation strategies, and more.bowel sounds episodes on early nutritionbowel sounds is a podcast on all things related to pediatric gastroenterology, hepatology, and nutrition. Episodes feature interviews with experts offering clinical and academic pearls and career advice with something for everyone regardless of career stage or discipline. New episodes are released every other monday. Two bowel sounds episodes which focus on early childhood nutrition include: early life nutrition and impact on childhood development and The role of The microbiome in healthy infant and early childhood nutrition.

Grants made by The Naspghan Foundation

GranteeGrant descriptionAmount
North American Socfor Pediatric Gastro- Enterology Hepatology and NutritionGeneral Support$15,000

Who funds The Naspghan Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
North American Socfor Pediatric Gastro- Enterology Hepatology and NutritionTo Support the Organization's Young Investigator Grant & Midlevel Grant.$250,000
William Sloane Jelin Charitable FoundationGeneral Support$2,000
Rao Family FoundationGeneral Donation$1,000
...and 1 more grant received

Personnel at The Naspghan Foundation

NameTitleCompensation
Margaret StallingsExecutive Director$50,000
Ann ScheimannPresident / Secretary - Treasurer / Director$0
Menno VerhavePast President$0
Barry WershilPast President / Past President / Past President / Past President / President / Secretary - Treasurer$0
John Barnard, MDPast President$0

Financials for The Naspghan Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,904,598
Program services$0
Investment income and dividends$104,663
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-13,870
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$1,995,391

Form 990s for The Naspghan Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-15990View PDF
2021-122022-11-14990View PDF
2020-122021-09-20990View PDF
2019-122020-12-07990View PDF
2018-122019-10-28990View PDF
...and 9 more Form 990s
Data update history
January 7, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 7, 2024
Updated personnel
Identified 1 new personnel
December 26, 2023
Received grants
Identified 2 new grant, including a grant for $250,000 from North American Socfor Pediatric Gastro- Enterology Hepatology and Nutrition
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 27, 2023
Received grants
Identified 1 new grant, including a grant for $2,000 from William Sloane Jelin Charitable Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersProfessional associationsDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthMedical disciplines
Characteristics
MembershipsConducts researchEndowed supportTax deductible donationsNo full-time employees
General information
Address
714 N Bethlehem Pike 300
Ambler, PA 19002
Metro area
Philadelphia-Camden-Wilmington, PA-NJ-DE-MD
Website URL
naspghan.org/ 
Phone
(215) 641-9800
IRS details
EIN
76-0585072
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1988
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G90: Medical Disciplines
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Subordinate organization
Free account sign-up

Want updates when The Naspghan Foundation has new information, or want to find more organizations like The Naspghan Foundation?

Create free Cause IQ account