EIN 47-4011296

The Myalgic Encephalomyelitis Action Network

IRS 501(c) type
501(c)(3)
Num. employees
8
Year formed
2014
Most recent tax filings
2023-09-01
Description
The Myalgic Encephalomyelitis Action Network aims to build a global movement that fights for recognition, education, and research to ensure all individuals with ME have access to compassionate and effective care. Advocacy is a cornerstone of their work, and they take decisive steps each year to strengthen their voice with the US government through institutions such as the National Institute of Health and the Center for Disease Control and Prevention. Their #MillionsMissing campaign is a global effort aimed at raising awareness and advocating for action on behalf of ME/CFS patients.
Total revenues
$859,633
2023
Total expenses
$724,538
2023
Total assets
$168,906
2023
Num. employees
8
2023

Program areas at The Myalgic Encephalomyelitis Action Network

Research and medical:we aim to grow The scientific field through outreach, education and patient-driven research so that treatments, diagnosis, and outcomes can improve for people with me.
#millionsmissing:#millionsmissing is our global effort to raise awareness and achieve rights for me/cfs patients. Since 2016, we have banded together every year to raise awareness and advocate for Action.
Digital advocacy and awareness:advocacy is a cornerstone of our work at #meaction. Every year, we take decisive steps to strengthen our voice with The us government through The national institute of health, The center for disease control & prevention, and The department of health and human services. We urge each agency to prioritize The health of people with me through accelerated research, clinical education, and a dedicated search for an fda-approved treatment. Influenced by The hiv/aids movement, our advocacy activities include participation in government committees, published petitions, open letters, meetings, peaceful protests, press conferences, advocacy days and more.

Who funds The Myalgic Encephalomyelitis Action Network

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
DAFgiving360Health$64,800
Ansell Family FoundationUnrestricted Grant$49,439
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$8,800
...and 3 more grants received

Financials for The Myalgic Encephalomyelitis Action Network

RevenuesFYE 09/2023
Total grants, contributions, etc.$839,488
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$20,145
Total revenues$859,633

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Epilepsy Foundation of Greater ChicagoChicago, IL$2,363,979
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Data update history
March 26, 2025
Received grants
Identified 2 new grant, including a grant for $5,619 from American Online Giving Foundation
September 30, 2024
Posted financials
Added Form 990 for fiscal year 2023
September 24, 2024
Updated personnel
Identified 1 new personnel
July 13, 2024
Received grants
Identified 2 new grant, including a grant for $49,439 from Ansell Family Foundation
April 15, 2024
Updated personnel
Identified 11 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchNational levelTax deductible donationsAccepts online donations
General information
Address
1217 Wilshire Blvd 3639
Santa Monica, CA 90403
Metro area
Los Angeles-Long Beach-Anaheim, CA
County
Los Angeles County, CA
Website URL
meaction.net/ 
Phone
(626) 354-7833
IRS details
EIN
47-4011296
Fiscal year end
September
Taxreturn type
Form 990
Year formed
2014
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current
FTB status revoked
Not revoked
AG Registration Number
CT0271347
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2025-08-06
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