Program areas at The Multiple System Atrophy Coalition
Research grant program to pinpoint a clear cause of Multiple System Atrophy and to identify a cure or effective therapies that slow, halt,or reverse The insidious progression of msa.
Creation and production of material and promotional items to raise awareness of Multiple System Atrophy in The medical and lay communities.
Patient and caregiver education and support, including annual conference, support telephone line, dvds and printed educational material.
Grants made by The Multiple System Atrophy Coalition
Who funds The Multiple System Atrophy Coalition
Grants from foundations and other nonprofits
Personnel at The Multiple System Atrophy Coalition
| Name | Title | Compensation | Date of data |
|---|
| Joseph Lindahl | Executive Director | $0 | 2023-10-17 |
| Pam Bower | Chair | $0 | 2022-12-31 |
| Patricia Libby Thvedt | Secretary | $0 | 2022-12-31 |
| Cynthia Roemer | Imed Past Chair | $0 | 2022-12-31 |
| Dawn Rodgers-Dexter | Treasurer | $0 | 2022-12-31 |
| ...and 4 more key personnel |
Financials for The Multiple System Atrophy Coalition
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $1,394,761 | $1,947,017 | -28.4% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $95,758 | $66,121 | 44.8% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $-23,540 | $18,007 | -230.7% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $1,466,979 | $2,031,145 | -27.8% |
Organizations like The Multiple System Atrophy Coalition
| Organization | Type | Location | Revenue |
|---|
| LiveLikeLou Foundation | 501(c)(3) | Oxford, OH | $2,796,333 |
| CURE Epilepsy (CURE) | 501(c)(3) | Chicago, IL | $6,231,376 |
| The Cure Starts Now | 501(c)(3) | Cincinnati, OH | $5,231,630 |
| Dysautonomia International | 501(c)(3) | East Moriches, NY | $1,485,666 |
| Pva Education Foundation | 501(c)(3) | Washington, DC | $446,838 |
| Spastic Paraplegia Foundation | 501(c)(3) | Fortson, GA | $1,249,081 |
| Cure Breast Cancer Foundation | 501(c)(3) | Clifton, NJ | $556,648 |
| Angel Fund | 501(c)(3) | Wakefield, MA | $928,586 |
| Chicagoland Arthritis Foundation | 501(c)(3) | Chicago, IL | $7,286,804 |
| FSHD Society | 501(c)(3) | Randolph, MA | $3,508,920 |
Data update history
December 1, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 30, 2023
Updated personnel
Identified 7 new personnel
November 27, 2023
Received grants
Identified 2 new grant, including a grant for $51,520 from DonateStock Charitable November 26, 2023
Used new vendors
Identified 2 new vendors, including , and
August 12, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchNational levelCommunity engagement / volunteeringTax deductible donationsNo full-time employees
General information
- Address
- 1660 International Dr 600
- Mclean, VA 22102
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- Fairfax County, VA
- Website URL
- multiplesystematrophy.org/Â
- Phone
- (866) 737-4999
IRS details
- EIN
- 74-2926378
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1999
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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