EIN 54-1784426

The International Waldenstrom's Macroglobulinemia Foundation

IRS 501(c) type
501(c)(3)
Num. employees
9
State
Year formed
1998
Most recent tax filings
2022-12-01
Description
IWMF supports and educates WM patients/caregivers, advances cure research, and sponsors publications.
Total revenues
$4,169,452
2022
Total expenses
$2,555,918
2022
Total assets
$9,055,891
2022
Num. employees
9
2022

Program areas at The International Waldenstrom's Macroglobulinemia Foundation

Provided 20 payments towards 15 different grants to further research in Waldenstrom's Macroglobulinemia: toward a rational targeted therapy, direct targeting The myd88 l265p driver mutation in wm, anti-tumor and immune microenvironment responses, crispr-based functional characterization of wm cells, origins and immunotherapy, from biology to treatment, modulation of t-cell function, novel antibody-targeted interferons, single-cell next generation, targeting The tumor microenvironment and corax in lymphoma.
Iwmf publications serve to educate and support patients and caregivers. Iwmf torch is a quarterly magazine which covers The latest information on Waldenstrom's Macroglobulinemia education, research, activities, and treatments.
Educational forums hosted a national educational forum for Waldenstrom's Macroglobulinemia patients and provided a grant to fund patient educational forums.
Other program services for International outreach and other program services for support groups.

Grants made by The International Waldenstrom's Macroglobulinemia Foundation

GranteeGrant descriptionAmount
Mayo ClinicResearch$172,000
Ohio State University / Erie County 4-H Horse Advisory ComiResearch$160,000
University System of New HampshireResearch$40,000
...and 2 more grants made

Who funds The International Waldenstrom's Macroglobulinemia Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Elizabeth L Elting FoundationGeneral Support$500,000
The Leukemia and Lymphoma SocietyincResearch Grant$100,000
Schwab Charitable FundHealth$68,850
...and 27 more grants received totalling $939,048

Personnel at The International Waldenstrom's Macroglobulinemia Foundation

NameTitleCompensation
Newton GuerinPresident and Chief Executive Officer$140,546
Ron BranscomeVice President for Fundrai$0
Thomas H Hoffmann FacsaccpVice President for Research$0
Carl LismanSecretary and Treasurer$0
Lisa J WiseVice President for Member$0
...and 9 more key personnel

Financials for The International Waldenstrom's Macroglobulinemia Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$3,930,369
Program services$205,000
Investment income and dividends$30,904
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$3,179
Total revenues$4,169,452

Form 990s for The International Waldenstrom's Macroglobulinemia Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-08-31990View PDF
2021-122022-09-29990View PDF
2020-122021-10-04990View PDF
2019-122021-02-17990View PDF
2018-122020-01-13990View PDF
...and 8 more Form 990s

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OrganizationLocationRevenue
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TSC AllianceSilver Spring, MD$10,016,383
National Psoriasis FoundationAlexandria, VA$11,591,439
Alpha-1 Foundation Alpha One FoundationMiami, FL$10,453,299
The Barth Syndrome FoundationLarchmont, NY$1,387,712
International Dyslexia Association (IDA)Pikesville, MD$2,197,837
Cure HHTMonkton, MD$3,740,865
Data update history
May 19, 2024
Received grants
Identified 12 new grant, including a grant for $500,000 from Elizabeth L Elting Foundation
October 23, 2023
Posted financials
Added Form 990 for fiscal year 2022
October 23, 2023
Received grants
Identified 3 new grant, including a grant for $13,500 from Zivin Family Foundation
October 23, 2023
Updated personnel
Identified 2 new personnel
July 18, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Provides grantsConducts researchOperates internationallyNational levelCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
Address
6144 Clark Ave
Sarasota, FL 34238
Metro area
North Port-Sarasota-Bradenton, FL
County
Sarasota County, FL
Website URL
iwmf.com/ 
Phone
(941) 927-4963
IRS details
EIN
54-1784426
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1998
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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