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EIN 20-2529619

The Hemophilia Alliance

IRS 501(c) type
501(c)(3)
Num. employees
11
City
Clearwater
State
Florida
Year formed
2005
Most recent tax filings
2023-12-01
NTEE code, primary
G20: Birth Defects and Genetic Diseases
Description
The Hemophilia Alliance provides member Hemophilia Treatment Center with resources and services to sustain the Comprehensive Care Model for individuals with bleeding and clotting disorders.
Total revenues
$9,774,069
2023
Total expenses
$8,224,147
2023
Total assets
$10,815,535
2023
Num. employees
11
2023

Program areas at The Hemophilia Alliance

To facilitate Purchasing terms and favorable pricing for members to obtain blood clotting factor and other products used to treat individuals with Hemophilia or related bleeding disorders. Counseling centers on complying with state & federal law and grant requirements, aiding in The production of educational pieces, promoting The value of The comprehensive care model to policy makers, patients and third-party payers.

Grants made by The Hemophilia Alliance

GranteeGrant descriptionAmount
National Bleeding Disorders FoundationPromote Advocacy, Education and Research for Patients and Families With Bleeding Disorders.$818,427
American Thrombosis and Hemostasis Network (ATHN)Enhanced Data Management Within Hemophilia Treatment Centers.$700,000
The Hemophilia Alliance FoundationSupport for Grants and Or Gifts To Organizations That Assist Individuals in Managing Their Care of Bleeding and Clotting Disorders.$675,000
...and 7 more grants made

Financials for The Hemophilia Alliance

RevenuesFYE 12/2023
Total grants, contributions, etc.$600,719
Program services$8,606,264
Investment income and dividends$544,066
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$23,020
Total revenues$9,774,069
Data update history
January 8, 2025
Posted financials
Added Form 990 for fiscal year 2023
January 5, 2025
Updated personnel
Identified 6 new personnel
January 22, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 22, 2024
Updated personnel
Identified 7 new personnel
January 2, 2024
Received grants
Identified 1 new grant, including a grant for $108,000 from The Alliance Pharmacy
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchLobbyingTax deductible donationsAccepts online donations
General information
Address
2655 Ulmerton Rd 263
Clearwater, FL 33762
Metro area
Tampa-St. Petersburg-Clearwater, FL
County
Pinellas County, FL
Website URL
hemoalliance.org/ 
Phone
(215) 279-9236
Facebook page
The-Hemophilia-Alliance 
Twitter profile
@hemoalliance 
IRS details
EIN
20-2529619
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2005
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G20: Birth Defects and Genetic Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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