EIN 27-0341021

The Fibrolamellar Cancer Foundation

IRS 501(c) type
501(c)(3)
Num. employees
3
Year formed
2009
Most recent tax filings
2022-12-01
NTEE code, primary
Description
The Fibrolamellar Cancer Foundation is a foundation that was established to raise awareness and research funds for fibrolamellar hepatocellular carcinoma, a rare form of liver cancer that is primarily seen in teens and young adults. Currently, there are no viable treatments or cures for the disease. The foundation's programs include grants to research organizations for fibrolamellar hepatocellular carcinoma. The foundation is located in Greenwich, CT.
Total revenues
$6,076,635
2022
Total expenses
$2,563,688
2022
Total assets
$10,981,422
2022
Num. employees
3
2022

Program areas at The Fibrolamellar Cancer Foundation

Grants to research organizations for Fibrolamellar carcinoma studies.

Grants made by The Fibrolamellar Cancer Foundation

GranteeGrant descriptionAmount
Cornell UniversityScientific Research$388,554
St Jude Children's Research HospitalScientific Research$200,000
Partners Healthcare System / Massachusetts General HospitalScientific Research$199,997
...and 3 more grants made

Who funds The Fibrolamellar Cancer Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Silicon Valley Community Foundation (SVCF)Health$150,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$115,700
The Sexton Family FoundationCharitable Contribution - Find A Cure and Treatment Options of Fibrolamellar Cancer$50,000
...and 21 more grants received totalling $537,826

Personnel at The Fibrolamellar Cancer Foundation

NameTitleCompensation
Kurt LosertChief Executive Officer$0
Sally A. Devinosr.Vice President Finance Operations, Stone Point Capital
Sandy VassosResearch Community Director
Mark FurthScientific Director$159,650
Derek GilchristDirector , Secretary$0
...and 5 more key personnel

Financials for The Fibrolamellar Cancer Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$6,073,580
Program services$0
Investment income and dividends$3,055
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$6,076,635

Form 990s for The Fibrolamellar Cancer Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-14990View PDF
2021-122022-11-15990View PDF
2020-122021-11-15990View PDF
2019-122021-03-02990View PDF
2018-122020-02-07990View PDF
...and 10 more Form 990s
Data update history
January 24, 2024
Posted financials
Added Form 990 for fiscal year 2022
December 23, 2023
Received grants
Identified 9 new grant, including a grant for $60,000 from The Sexton Family Foundation
July 16, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 29, 2023
Posted financials
Added Form 990 for fiscal year 2020
May 17, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersCancer
Characteristics
Operates donor advised fundsProvides grantsConducts researchFundraising eventsOperates internationallyFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
20 Horseneck LN 2nd Floor
Greenwich, CT 06830
Metro area
Bridgeport-Stamford-Norwalk, CT
County
Fairfield County, CT
Website URL
fibrofoundation.org/ 
Phone
(203) 862-3196
IRS details
EIN
27-0341021
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2009
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G30: Cancer
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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