EIN 46-3339186

The Brain Tumor Network

IRS 501(c) type
501(c)(3)
Num. employees
20
State
Year formed
2013
Most recent tax filings
2022-12-01
Description
The Brain Tumor Network is a non-profit organization that provides free treatment-related navigation services to brain tumor patients in the USA. Its mission is to offer compassionate and personalized navigation services to patients and caregivers, as well as assist them in finding clinical trials that suit their needs. The core program of BTN is patient navigation services, which are crucial due to the limited availability of personalized treatment information for primary brain tumor patients in the USA. It was launched in late 2014 and is headquartered in Ponte Vedra Beach, FL.
Total revenues
$3,496,674
2022
Total expenses
$1,991,871
2022
Total assets
$4,426,513
2022
Num. employees
20
2022

Program areas at The Brain Tumor Network

Patient navigation services are The core program of The Brain Tumor Network (btn). With The scarcity of personalized treatment information available to individuals in The usa diagnosed with primary Brain tumors, btn provides important informational/navigation services to patients, caregivers, and care providers. Our team of nurse navigators and social workers respond to online requests and telephone inquiries to meet patients/families wherever they are in their Brain Tumor treatment journey, and to help them gather The information they need to explore their next steps with their healthcare providers. Btn navigated 737 patients nationwide during 2022. Services provided include: conducting personalized clinical trial searches, assistance ascertaining eligibility for participation in identified trials, facilitating second opinions and consultations, identifying specialty providers near patients' home communities, and obtaining and reviewing patient records. Btn does not provide medical advice, but does provide personalized treatment-related information to equip patients and family to enter into decision-making conversations with their healthcare professionals.

Who funds The Brain Tumor Network

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Community Foundation for Northeast FloridaFor General Operating Support$2,995,000
Adam Michael Rosen FoundationSocial Services for Brain Cancer Patients$100,000
Erasca FoundationTo Provide Free, Individualized Navigation To Help Patients and Loved Ones Manage A Primary Brain Tumor Diagnosis, Overcome Treatment Obstacles, and Facilitate Access To Quality Healthcare.$25,000
...and 10 more grants received

Personnel at The Brain Tumor Network

NameTitleCompensation
Jill WyantPresident and Chief Executive Officer, Madison$0
Dan RyanManaging Director
Hilary KeeleyExecutive Director, the Sontag Foundation$0
Kay W. VerbleFormer Executive Director
Laura D. Hynes, Ma, BSN, Ba, RNDirector of Operations
...and 3 more key personnel

Financials for The Brain Tumor Network

RevenuesFYE 12/2022
Total grants, contributions, etc.$3,464,824
Program services$0
Investment income and dividends$31,850
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$3,496,674

Form 990s for The Brain Tumor Network

Fiscal year endingDate received by IRSFormPDF link
2022-122023-10-25990View PDF
2021-122022-05-24990View PDF
2020-122021-06-16990View PDF
2019-122020-10-13990View PDF
2018-122019-10-12990View PDF
...and 4 more Form 990s
Data update history
February 4, 2024
Received grants
Identified 4 new grant, including a grant for $2,995,000 from The Community Foundation for Northeast Florida
December 3, 2023
Posted financials
Added Form 990 for fiscal year 2022
October 26, 2023
Received grants
Identified 2 new grant, including a grant for $25,000 from Erasca Foundation
September 18, 2023
Updated personnel
Identified 1 new personnel
June 26, 2023
Received grants
Identified 10 new grant, including a grant for $1,199,000 from The Community Foundation for Northeast Florida
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersCancer
Characteristics
Conducts researchTax deductible donations
General information
Address
816 A1a N 201
Ponte Vedra Beach, FL 32082
Metro area
Jacksonville, FL
Website URL
braintumornetwork.org/ 
Phone
(844) 286-6110
IRS details
EIN
46-3339186
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2013
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G40: Diseases of Specific Organs
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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