EIN 20-6745475

The Adenoid Cystic Carcinoma Research Foundation

IRS 501(c) type
501(c)(3)
Num. employees
2
Year formed
2005
Most recent tax filings
2022-12-01
NTEE code, primary
Description
The Adenoid Cystic Carcinoma Research Foundation strives to support and coordinate research aimed at accelerating the development of improved therapies and a cure for the disease. Their mission is to identify molecular targets and pathways that allow Adenoid Cystic Carcinoma to progress through descriptive and functional studies, as well as support drug discovery, development, preclinical drug screening, and correlative studies. Ultimately, their goal is to bring treatments with clinical benefits to patients suffering from the disease. They are located in Needham, MA.
Also known as...
Jeffrey A Kaufman Ttee
Total revenues
$1,386,655
2022
Total expenses
$1,618,196
2022
Total assets
$2,659,707
2022
Num. employees
2
2022

Program areas at The Adenoid Cystic Carcinoma Research Foundation

Translation to The clinic: accrf supports and coordinates Research into treatments most likely to lead to clinical ebenfit for Adenoid Cystic Carcinoma patients. Drug discovery, drug development, preclinical drug screening and correlative studies are crucial to The initiation and optimal conduct of clinical trials.
Basic Research: accrf supports and coordinates The descriptive and functional studies that identify molecular targets and pathways that permit Adenoid Cystic Carcinoma to progress. By focusing on The mechanisms of action, researchers may discover more quickly The achilles' heel of The disease.

Grants made by The Adenoid Cystic Carcinoma Research Foundation

GranteeGrant descriptionAmount
Dana-Farber Cancer InstituteSupport for the Study of Targeted Protein Degradation Approaches To Define the Molecular Mechanisms of Myb Oncoproteins in Acc$242,712
Johns Hopkins University (JHU)Support for A Phase 2, Single-Arm, Multi-Center Study of 177lu-psma (177lu-pnt2002) in Patients With Psma-Positive Adenoid Cystic Carcinoma$100,000
Dana-Farber Cancer InstituteSupport for Therapeutic Drug Screening Using A Novel Implantable Microdevice (Imd) in Adenoid Cysticcarcinoma (Acc): A Window of Opportunity Study$25,000
...and 3 more grants made

Who funds The Adenoid Cystic Carcinoma Research Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$336,750
Brave Like Gabe FoundationRare Cancer Research$70,000
The 3 B'S FoundationGeneral Operations$32,390
...and 5 more grants received

Personnel at The Adenoid Cystic Carcinoma Research Foundation

NameTitleCompensation
Marnie A KaufmanDirector and Chief Financial Officer$0
Jeffrey A KaufmanExecutive Director$150,000
Nicole Spardy BurrDirector of Research$124,166
Ralph MollisTreasurer$0
Thomas DilengeBoard Vice Chair$0

Financials for The Adenoid Cystic Carcinoma Research Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$807,996
Program services$551,076
Investment income and dividends$11,819
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$15,764
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$1,386,655

Form 990s for The Adenoid Cystic Carcinoma Research Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-05-14990View PDF
2021-122022-05-16990View PDF
2020-122021-05-28990View PDF
2019-122020-08-10990View PDF
2018-122019-06-19990View PDF
...and 7 more Form 990s
Data update history
November 27, 2023
Received grants
Identified 1 new grant, including a grant for $70,000 from Brave Like Gabe Foundation
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 9, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 1, 2023
Updated personnel
Identified 3 new personnel
June 27, 2023
Used new vendors
Identified 1 new vendor, including
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Conducts researchOperates internationallyNational levelAuction fundraisersTax deductible donations
General information
Address
PO Box 442
Needham, MA 02494
Metro area
Boston-Cambridge-Newton, MA-NH
County
Norfolk County, MA
Website URL
accrf.org/ 
Phone
(781) 248-9699
IRS details
EIN
20-6745475
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2005
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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