Program areas at Texas Neurofibromatosis Foundation
The organization funds and supports neurofibromatosis research projects and participates in a Neurofibromatosis National Affairs Coalition to increase public awareness and insure and increase funding allocated from federally funded programs.
The organization increases neurofibromatosis public awareness by publishing newsletters, public speaking engagements, exhibiting at state educational and medical meetings, and using billboards.
The organization provides neurofibromatosis educational materials/information to patients, physicians, teachers and counselors; physician and clinical referrals; and statewide neurofibromatosis clinics. It conducts a symposium featuring nationally recognized researchers, a yearly family camp, and family support groups. In 2016 the the family camp served 136 patients and family members, 6 support groups serving 95 individuals, total served though events and clinics were 768 patients.
Who funds Texas Neurofibromatosis Foundation
Grants from foundations and other nonprofits
Personnel at Texas Neurofibromatosis Foundation
| Name | Title | Compensation | Date of data |
|---|
| Cindy Hahn | Executive Director | $87,000 | 2022-12-31 |
| Laura Lyon | President | $0 | 2023-06-30 |
| Laina Olinger | Director and Vice President | $0 | 2022-12-31 |
| Tricia Madden | Director and Secretary | $0 | 2022-12-31 |
| Chris Cason | Director / President | $0 | 2021-12-31 |
| ...and 1 more key personnel |
Financials for Texas Neurofibromatosis Foundation
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $560,761 | $294,789 | 90.2% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $2,426 | $10,045 | -75.8% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $1,021 | $43,114 | -97.6% |
| Total revenues | $564,208 | $347,948 | 62.2% |
Organizations like Texas Neurofibromatosis Foundation
| Organization | Type | Location | Revenue |
|---|
| Epilepsy Foundation of Texas | 501(c)(3) | Houston, TX | $1,612,999 |
| ALS Association St Louis Regional Chapter | 501(c)(3) | Saint Louis, MO | $2,624,591 |
| Epilepsy Foundation of Greater Los Angel | 501(c)(3) | Los Angeles, CA | $1,788,459 |
| Epilepsy Foundation of Connecticut | 501(c)(3) | Middletown, CT | $389,163 |
| The Als Association - Arizona Chapter | 501(c)(3) | Phoenix, AZ | $1,372,285 |
| ALS Association of Georgia | 501(c)(3) | Atlanta, GA | $1,495,964 |
| Hypertrophic Cardiomyopathy Association | 501(c)(3) | Denville, NJ | $1,106,885 |
| National Multiple Sclerosis Society Georgia Chapter | 501(c)(3) | Atlanta, GA | $1,468,933 |
| Neurofibromatosis Midwest | 501(c)(3) | Saint Charles, IL | $220,690 |
| Les Turner ALS Foundation | 501(c)(3) | Skokie, IL | $2,660,033 |
Data update history
August 25, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 15, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 1, 2023
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchLobbyingFundraising eventsState / local levelEndowed supportGala fundraisersAuction fundraisersTax deductible donations
General information
- Address
- 511 E John Carpenter Freeway
- Irving, TX 75062
- Metro area
- Dallas-Fort Worth-Arlington, TX
- County
- Dallas County, TX
- Website URL
- texasnf.org/Â
- Phone
- (972) 739-6086
IRS details
- EIN
- 74-2138345
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1980
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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