Systemic Jia Foundation

Systemic Jia Foundation plans several types of fundraising: 1) donations from families with sjia: the Systemic Jia Foundation will reach out to families with sjia to both contribute and raise funds for the benefit of the Systemic Jia Foundation. The Systemic Jia Foundation will raise funds online, using fundraising sites such as crowdrise, stripe, facebook or fundraising functionality on our own website.2) event sponsorships from pharma companies: for any events the Systemic Jia Foundation organize, the Systemic Jia Foundation will reach out to pharma companies who are interested in sjia to give sponsorships at different levels to support the event.3) general: the Systemic Jia Foundation will undertake additional fundraising from a variety of sources including mail, email, personal and phone solicitations. The organization will create proposals and other materials that will be necessary to submit in order for the organization to receive grants and donations.4) grants from other charitable organizations. The Systemic Jia Foundation will raise additional funds from other charitable foundations.

Grant to cincinnati children's hospital this grant has been provided to fund the research, conducting an initial observational study for the collection of biospecimens and patient data and establishing a clinical and scientific research network (the "research network"), each for the study of Systemic juvenile idiopathic arthritis.

Grants to the bambino gesu hospital and umc utrecht: grants used to fund key european researchers to advance the study of Systemic juvenile idiopathic arthritis.

Nextgen 2022 conference:nextgen conference organized virtually from february 16 to february 18, 2022. The purpose of the conference is to advance therapies for sjia, still's disease and mas with special emphasis on clinical trials and options for refractory disease.