1. Directory
  2. North Carolina
  3. Wilmington
  4. Koolen-de Vries Syndrome Foundation
EIN 46-3208388

Koolen-de Vries Syndrome Foundation

IRS 501(c) type
501(c)(3)
Num. employees
0
City
Wilmington
State
North Carolina
Year formed
2013
Most recent tax filings
2022-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
The Koolen-de Vries Syndrome Foundation hosts patient advocacy summits and social gathering events for the kdvs community and interested medical professionals. The foundation also promotes research of kdvs in fields including clinical, drug therapy, speech therapy, and epilepsy.
Also known as...
Supporting Families with Koolen Syndrome
Total revenues
$237,465
2022
Total expenses
$41,563
2022
Total assets
$599,559
2022
Num. employees
0
2022

Program areas at Koolen-de Vries Syndrome Foundation

Promoting research of kdvs in fields including clinical, drug therapy, speech therapy, and epilepsy.
Increasing awareness of kdvs in both the general population and medical profession.
Providing patient advocacy summits and social gathering events for the kdvs community and interested medical professionals.

Who funds Koolen-de Vries Syndrome Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Community Foundation of Elkhart County (CFEC)To Further the Exempt Purpose of the Organization$10,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$8,530
AmazonSmile FoundationGeneral Support$1,735
...and 2 more grants received

Personnel at Koolen-de Vries Syndrome Foundation

NameTitleCompensation
Gabriel StagnerTreasurer$0
Ashley PointPresident$0
Alayna HaynamVice President$0
Andy SpeirsPast Treasurer$0

Financials for Koolen-de Vries Syndrome Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$237,458
Program services$0
Investment income and dividends$7
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$237,465

Form 990s for Koolen-de Vries Syndrome Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-08-15990View PDF
2021-122022-11-14990View PDF
2020-122021-11-15990View PDF
2019-122021-02-24990View PDF
2018-122020-06-23990View PDF
Data update history
September 30, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 17, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 30, 2023
Posted financials
Added Form 990 for fiscal year 2020
June 28, 2023
Updated personnel
Identified 1 new personnel
June 27, 2023
Received grants
Identified 1 new grant, including a grant for $10,000 from Community Foundation of Elkhart County (CFEC)
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchOperates internationallyNational levelTax deductible donationsNo full-time employees
General information
Address
609a Piner Rd 319
Wilmington, NC 28409
Metro area
Wilmington, NC
Website URL
kdvsfoundation.org/ 
Phone
(833) 731-5387
IRS details
EIN
46-3208388
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2013
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
Free account sign-up

Want updates when Koolen-de Vries Syndrome Foundation has new information, or want to find more organizations like Koolen-de Vries Syndrome Foundation?

Create free Cause IQ account
Cause IQ is a website that helps companies grow, maintain, and serve their nonprofit clients, and helps nonprofits find additional foundation funding. Our data and tools help professionals prospect for nonprofits, research opportunities, benchmark their clients, and enrich existing information.
Nonprofits
Product
Customers
About

© 2024 Nonprofit Metrics LLC
Terms of Service and Privacy Policy