EIN 22-2417590

Spina Bifida of Western New York

Name: Spina Bifida of Western New York financials for 2022
Creator: Cause IQ
License: https://creativecommons.org/licenses/by-nc-nd/4.0/

IRS 501(c) type

501(c)(3)

Num. employees

City

Middleport

State

New York

Year formed

1981

Most recent tax filings

2022-12-01

NTEE code, primary

G50: Nerve, Muscle, and Bone Diseases

Description

Spina Bifida of Western New York empowers people and enhances lives affected by Spina Bifida in the region. They offer a community of support, education, and strong relationships to help individuals live their lives to the fullest. They organize ongoing recreational and social activities that promote socialization, networking, public awareness, and disability education for both youth and adults. Additionally, they provide family reimbursement programs that cover medical expenses related to Spina Bifida which are not covered by other funding sources.

Also known as...

Spina Bifida Association of WNY

Total revenues

$55,136

2022

Total expenses

$114,768

2022

Total assets

$330,183

2022

Num. employees

2022

Program areas at Spina Bifida of Western New York

Family/Individual Support Activities - ongoing throughout the year. Activities include recreational and social group activities for youth and adults to promote socialization, networking, public awareness and disability education.

Family Reimbursement Programs - 3 reimbursements were distributed for medical expenses specifically related to Spina Bifida and not covered by other funding sources.

Who funds Spina Bifida of Western New York

Grants from foundations and other nonprofits

Grantmaker	Grantmaker tax period	Description	Amount
AmazonSmile Foundation	2022-12	General Support	$5

Personnel at Spina Bifida of Western New York

Name	Title	Compensation	Date of data
Pamela Morris	Presidentsecretary	$0	2021-07-28
Olya Schumacher	President	$0	2022-10-27
Kristi Leone	Secretary	$0	2021-12-31
Janet Slack	Treasurer	$0	2021-12-31
Cynthia Carlson	Vice President	$0	2021-12-31

Financials for Spina Bifida of Western New York

Revenues	FYE 12/2022	FYE 12/2021	% Change
Total grants, contributions, etc.	$18,997	$2,135	789.8%
Program services	$0	$0	-
Investment income and dividends	$4,241	$8,694	-51.2%
Tax-exempt bond proceeds	$0	$0	-
Royalty revenue	$0	$0	-
Net rental income	$0	$0	-
Net gain from sale of non-inventory assets	$31,898	$69,454	-54.1%
Net income from fundraising events	$0	$0	-
Net income from gaming activities	$0	$0	-
Net income from sales of inventory	$0	$0	-
Miscellaneous revenues	$0	$0	-
Total revenues	$55,136	$80,283	-31.3%

Form 990s for Spina Bifida of Western New York

Fiscal year ending	Date received by IRS	Form	PDF link
2021-12	2022-10-27	990	View PDF
2020-12	2021-07-28	990EZ	View PDF
2018-12	2020-01-10	990EZ	View PDF
2017-12	2018-11-15	990EZ	View PDF
2016-12	2017-10-03	990EZ	View PDF
...and 6 more Form 990s

Organizations like Spina Bifida of Western New York

Organization	Type	Location	Revenue
The Malik Attila Cosby Foundation	501(c)(3)	Bowie, MD	$21,340
Take A Shot at Parkinsons	501(c)(3)	Redding, CA	$18,879
Parkinson's Association of West Michigan	501(c)(3)	Grand Rapids, MI	$59,529
Lees Cares Foundation	501(c)(3)	Logan, UT	$115,720
Nebraska State Stroke Association	501(c)(3)	Lincoln, NE	$103,882
Kelseys Kaleidoscope A New View for Pan	501(c)(3)	Blackwood, NJ	$43,426
United Spinal Association Illinois Chapter	501(c)(3)	Palos Heights, IL	$70,254
Central Jersey Spinal Cord Association	501(c)(3)	New Brunswick, NJ	$39,719
Als Fundraiser	501(c)(3)	Roseau, MN	$164,608
Spina Bifida of Greater St Louis	501(c)(3)	Saint Louis, MO	$62,201

Data update history

July 14, 2023

Posted financials

Added Form 990 for fiscal year 2021

July 4, 2023

Updated personnel

Identified 3 new personnel

April 12, 2022

Used new vendors

Identified 1 new vendor, including

April 6, 2022

Posted financials

Added Form 990EZ for fiscal year 2020

October 15, 2020

Posted financials

Added Form 990EZ for fiscal year 2018

Nonprofit Types

Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities

Issues

HealthDiseases and disorders

Characteristics

Conducts researchPartially liquidatedFundraising eventsState / local levelTax deductible donationsNo full-time employees

General information

Address: 3515 Drum Rd; Middleport, NY 14105
Metro area: Buffalo-Cheektowaga, NY
Website URL: sbwny.org/spina_bifida_facts0.aspx
Phone: (716) 735-9683

IRS details

EIN: 22-2417590
Fiscal year end: December
Taxreturn type: Form 990
Year formed: 1981
Eligible to receive tax-deductible contributions (Pub 78): Yes

Categorization

NTEE code, primary: G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary: 813212: Health and Disease Research Fundraising Organizations
Parent/child status: Independent

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Spina Bifida of Western New York

Program areas at Spina Bifida of Western New York

Who funds Spina Bifida of Western New York

Personnel at Spina Bifida of Western New York

Financials for Spina Bifida of Western New York

Form 990s for Spina Bifida of Western New York

Organizations like Spina Bifida of Western New York

Nonprofits

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