Program areas at Spina Bifida Association of Kentucky
SPINA BIFIDA FAMILY CAMP One of SBAK's most popular programs is the annual family camp weekend at the Center for Courageous Kids in Scottsville KY. This camp allows children with Spina Bifida and their families to attend an accessible, medically staffed sleep-away camp where families participate in fishing, archery, swimming, and more. In 2023, 29 families attended this three-day camp.
MULTIGENERATIONAL PROGRAMS Programming for all those with Spina Bifida and their families. Includes social and holiday activities as well as educational programs and events and the the SBAK Financial Assistance Fund. The SBAK Financial Assistance Fund helped 3 families with emergency payments of utilities and rent during extended hospital stays for their child with Spina Bifida. The Fund also helped an adult with Spina Bifida pay for new leg braces and a child with Spina Bifida who is a double amputee attend a specialized camp.
CHILDREN'S PROGRAMS From newborn to teen, SBAK provides social and educational programming to help kids with Spina Bifida and their parents/guardians learn to navigate their ever-changing world. These programs provide a chance for kids to interact with others who have similar challenges and, as they grow, teaches them how to advocate for themselves and mange their own medical care. Parents/guardians are provided with educational materials and a chance to get information and advice from experts and other parents who face similar issues.
Who funds Spina Bifida Association of Kentucky
Grants from foundations and other nonprofits
Personnel at Spina Bifida Association of Kentucky
| Name | Title | Compensation | Date of data |
|---|
| Doug Dressman | Executive Director | $60,010 | 2022-12-31 |
| Sarah Richardson | Program Director and Interim Executive Director | $37,421 | 2024-01-21 |
| Maria Baker | Administrative Manager | | 2024-01-21 |
| Colleen Payne | Board Member | $0 | 2024-01-21 |
| Jonathan Evans | Chair | $0 | 2024-01-21 |
| ...and 11 more key personnel |
Financials for Spina Bifida Association of Kentucky
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $216,092 | $313,139 | -31% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $308 | $162 | 90.1% |
| Tax-exempt bond proceeds | | $0 | - |
| Royalty revenue | | $0 | - |
| Net rental income | | $0 | - |
| Net gain from sale of non-inventory assets | | $0 | - |
| Net income from fundraising events | $-1,836 | $-35,342 | 94.8% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $2,000 | $0 | 999% |
| Total revenues | $216,564 | $277,959 | -22.1% |
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Data update history
January 23, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 22, 2024
Updated personnel
Identified 9 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsState / local levelGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 982 Eastern Pkwy Ste 18
- Louisville, KY 40217
- Metro area
- Louisville/Jefferson County, KY-IN
- County
- Jefferson County, KY
- Website URL
- spinabifidakentucky.org/Â
- Phone
- (502) 637-7363
IRS details
- EIN
- 31-1081176
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1983
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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