Cause IQ organization profile

Sjorgrens Syndrome Foundation (SSF)

Program areas | Form 990s | Financials | Vendors | Personnel | Peers

SSF is a trade / professional association based in Reston, VA that was founded in 1983. As of 2019 they had $3.4 million in revenue and $2.0 million in assets.

SSF provides patients with practical information and coping strategies that minimize the effects of Sjogren's.

Previous legal names or variations of their name include: Sjogren's Syndrome Foundation.

(800) 475-6473
Fiscal year end:
Revenue trends:
Asset trends:

Program areas at SSF

Research initiatives promote continued medical, scientific and clinical research in the area of sjogren's. Ssf awarded five research grants to university affiliated researchers during 2019.

Awareness activities help to promote sjogren's and educate potential patients through media and public relations. These programs include speaking at professional conferences as well as distributing educational materials to the public and to healthcare professionals.

Newsletter - the foundation produces two newsletters. "the moisture seekers" is a patient focused newsletter with information about sjogren's and its many manifestations. Tms is produced monthly. The "sjogren's quarterly" is a professional publication produced 4 times a year and offered free to all healthcare professionals to increase awareness and education around sjogren's.

Form 990s for SSF

Fiscal year endingDate received by IRSFormPDF link
2019-06Jan 14, 2020990View PDF
2018-06Feb 21, 2019990View PDF
2017-06Jan 19, 2018990View PDF
2016-06Mar 2, 2017990View PDF
2015-06Jan 20, 2016990View PDF
...and five more Form 990 PDFs

Financials for SSF

Total grants, contributions, etc.$3,035,820
Program services$385,495
Investment income and dividends$24,943
Tax-exempt bond proceeds$0
Royalty revenue$1,595
Net rental income$0
Net gain from sale of non-inventory assets$9,319
Net income from fundraising events$-63,873
Net income from gaming activities$0
Net income from sales of inventory$22,458
Miscellaneous revenues$632
Total revenues$3,416,389

Vendors for SSF

VendorServicesAmount paidDate
DrupalContent management system software2020-06-21
███████Marketing software; CRM software; Content management system software2020-06-21
██████ ███ ███████ ███ ██Tax accounting2019-02-19

Personnel at SSF

NameTitleCompensationMost recent data
Steven TaylorChief Executive Officer$284,232Sept. 4, 2019
Sheriese DefruscioVice President of Marketing and Corporate Relations$117,452Sept. 4, 2019
███ ██████Vice President of Philanthropy-Sept. 4, 2019
█████████ ███████Vice President of Medical and Scientific Affairs$114,408Sept. 11, 2019
█████ █████Vice President of Field Services-Sept. 4, 2019
█████████ ███████Vice President-Sept. 4, 2019
█████ ██ ██████Chairman of the Board$0Aug. 21, 2019
██████ ███████Secretary$0Aug. 21, 2019
█████ ██ ██████Chairman - Elect$0Aug. 21, 2019
███████ █████Chairman of the Board$0July 3, 2018
...and three more key personnel

Peer trade / professional associations and chambers of commerce

1Prader-Willi Syndrome (PWS)501(c)(3)$1.2 millionSarasota, FL
2Asthma and Allergy Foundation of America501(c)(3)$3.9 millionArlington, VA
3Association for Research in Vision and Ophthalmology501(c)(3)$10 millionRockville, MD
4International Association for Dental Research (IADR)501(c)(3)$6.6 millionAlexandria, VA
5American Association of Physicists in Medicine (AAPM)501(c)(3)$10 millionAlexandria, VA
6Brain Injury Association of America (BIAA)501(c)(3)$3.1 millionVienna, VA
7American Academy of Otolaryngology - Head and Neck Surgery Foundation (AAO-HNS)501(c)(3)$10 millionAlexandria, VA
8National Foundation for Ectodermal Dysplasias501(c)(3)$909,237Fairview Heights, IL
9Epilepsy Foundation New England501(c)(3)$6.9 millionLowell, MA
10Orthopaedic Research Society501(c)(3)$3.2 millionRosemont, IL
11The American Occupational Therapy Foundation501(c)(3)$3.6 millionBethesda, MD
12Association of Academic Physiatrists (AAP)501(c)(3)$2.3 millionOwings Mills, MD
13American Society for Clinical Investigation (ASCI)501(c)(3)$4.9 millionAnn Arbor, MI
14Vermont Oxford Network (VON)501(c)(3)$7.2 millionBurlington, VT
15Spina Bifida Association of America501(c)(3)$2.9 millionArlington, VA
16Registry of Interpreters for the Deaf501(c)(3)$2.9 millionAlexandria, VA
17Association for Education and Rehabilitation of the Blind and Visually Impaired501(c)(3)$927,530Alexandria, VA
18Alliance for Academic Internal Medicine501(c)(3)$7.2 millionAlexandria, VA
19Association of Clinical Research Professionals (ACRP)501(c)(3)$6.3 millionAlexandria, VA
20American Counseling Association501(c)(3)$13 millionAlexandria, VA
21American Association of Pharmaceutical Scientists (AAPS)501(c)(3)$9.7 millionArlington, VA
22American Anthropological Association (AAA)501(c)(3)$6.7 millionArlington, VA
23Association of Government Accountants501(c)(3)$6.4 millionAlexandria, VA
24Teachers of English to Speakers of Other Languages International Association (TESOL)501(c)(3)$5.2 millionAlexandria, VA
25American Association of Family and Consumer Sciences (AAFCS)501(c)(3)$2.3 millionAlexandria, VA

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