Program areas at Sickle Cell Disease Association of America
HRSA: To provide a newborn screening follow-up program that ensures access to care for individuals with sickle cell disease (SCD). It includes providing follow-up services: Education, counseling, lead advocacy initiatives, and access to medical home.
PCORI: To develop a national advocate network of sickle cell disease patients, families, caregivers and other stakeholders experts that can partner with clinicians and researchers to design, implement and eventually disseminate patient centered outcomes research and comparative effectiveness research (PCOR/CER) projects that improve outcomes to patients with sickle cell disease (SCD).
SCDAA: SCDAA and its member organizations engage in community outreach and program efforts throughout the United States and Canada. These efforts include but not limited to: Educational campaigns that build awareness of SCD and related conditions and programs that provide services such as genetic testing and counseling, case management, and psychosocial support for individuals and families impacted by sickle cell disease.
Who funds Sickle Cell Disease Association of America
Grants from foundations and other nonprofits
Personnel at Sickle Cell Disease Association of America
| Name | Title | Compensation | Date of data |
|---|
| Monica B. Mitchell, Ed.d. | Founder and President and Chief Executive Officer | | 2023-07-19 |
| Regina Hartfield | President and Chief Executive Officer | $0 | 2023-11-10 |
| Lewis Hsu | Chief Medical Officer | $0 | 2023-07-19 |
| Leroy Hughes | Vice President - Operations | $0 | 2022-12-31 |
| Jakela Walker | Board Treasurer | $0 | 2023-07-19 |
| ...and 7 more key personnel |
Financials for Sickle Cell Disease Association of America
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $529,276 | $2,049,646 | -74.2% |
| Program services | $666,861 | $1,228,946 | -45.7% |
| Investment income and dividends | $-96,347 | $105,021 | -191.7% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $5,005 | $7,289 | -31.3% |
| Total revenues | $1,104,795 | $3,390,902 | -67.4% |
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Data update history
January 21, 2024
Posted financials
Added Form 990 for fiscal year 2022
November 26, 2023
Received grants
Identified 1 new grant, including a grant for $119,012 from The GBT Foundation November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsNational levelReceives government fundingCommunity engagement / volunteeringTax deductible donationsAccepts online donations
General information
- Address
- 7240 Pkwy Dr
- Hanover, MD 21076
- Metro area
- Baltimore-Columbia-Towson, MD
- County
- Anne Arundel County, MD
- Website URL
- sicklecelldisease.org/Â
- Phone
- (410) 528-1555
IRS details
- EIN
- 23-7175985
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1972
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current - Awaiting Reporting
- FTB status revoked
- Not revoked
- AG Registration Number
- 014795
- FTB Entity ID
- 0699197
- AB 488 data last updated ("as-of") date
- 2024-11-20
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