EIN 81-3557785

RUNX1 Research Program

IRS 501(c) type
501(c)(3)
Num. employees
6
Year formed
2016
Most recent tax filings
2023-12-01
NTEE code, primary
Description
RUNX1 Research Program continues to sponsor research with a co-funding partnership with Alexs Lemonade Stand Foundation for the year 2022. As part of the RUNX1 Familial Research Program, $200,000 was granted for research grants and $165,000 was awarded in Early Career Investigation (ECI) grants. Additionally, in partnership with the National Institutes of Health and its National Institute of Allergy and Infectious Disease and National Cancer Institute, this program supports two scientific projects through grant mechanisms.
Also known as...
Runx1 Foundation
Total revenues
$1,549,012
2023
Total expenses
$2,069,746
2023
Total assets
$1,031,227
2023
Num. employees
6
2023

Program areas at RUNX1 Research Program

2023 Independent grants include the continued support of two researchers at University of Pennsylvania: Dr. Nancy Speck ($175,000) in the optimization of RUNX1-FPD CHIP mouse models, and Dr. Ximena Jordan-Bruno, Biobanking Lead (60,000); and ongoing research with Dr. Morty Pontz at Childrens Hospital of Philadelphia CHOP ($46,875)
Sponsored Research. 2023 co-funding partnership with Alexs Lemonade Stand Foundation (ALSF) continued, $195,000 supported a wide array of ground breaking research projects spanning basic science honing in on gene regulatory networks affected by RUNX1 mutations, classification of RUNX1 variants via novel saturation mutagenesis methods, modeling clonal evolution driven by common secondary somatic mutations, development of clinical consensus guidelines for RUNX1-FPD and defining the role of NLRP3 inflammasome in RUNX1 deficiency.
Sponsored Research. 2023 co-funding partnership with the National Institutes of Health, National Institute of Allergy and Infectious Disease (NIAID) and National Cancer Institute (NCI), this grant mechanism supports 2 projects with scientific investigators Dr. Zon and Dr. Cantor both at Boston Childrens Hospital and their collaborators at NIAID and NCI, respectively. The two projects are entitled, Rescue of RUNX1 deficiency phenotypes in RUNX1-FPD patients treated with imatini and Defining clonal and metabolic alterations in the evolution of RUNX1-FPD.
Sponsored Research. 2022 Focused Impact Research (FIRE) grant program. Continued co-funding partnership with EP Evans Foundation supported two projects (Dr. Bick and Dr. Agarwal) aimed at determining the role of inflammation in the initiation and progression of hematologic malignancies driven by germline RUNX1 mutations.
Sponsored Research. 2022 Mark Foundation Cancer Research (MFCR) Seeking Transformational Research Venture (STRIVE) - Continued Grant partnership. Sponsoring Institutes include research by Dr. Lucio Castilla, University of Massachusetts Medical School.

Grants made by RUNX1 Research Program

GranteeGrant descriptionAmount
Boston Children's HospitalRise Grant Program$250,000
University of Pennsylvania (Penn)RRP Independent Grant$235,000
Edward P. Evans FoundationResearch Pship With Ep Evans$50,000
...and 6 more grants made

Who funds RUNX1 Research Program

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
National Philanthropic TrustCulture & Arts$1,000,000
Babich Family FoundationMedical Awareness and Research$223,500
Vanguard Charitable Endowment ProgramFor Recipient's Exempt Purpose$101,000
...and 5 more grants received

Financials for RUNX1 Research Program

RevenuesFYE 12/2023
Total grants, contributions, etc.$1,542,823
Program services$0
Investment income and dividends$6,189
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$1,549,012
Data update history
March 26, 2025
Received grants
Identified 3 new grant, including a grant for $8,600 from Global Genes
October 20, 2024
Received grants
Identified 2 new grant, including a grant for $25,622 from The Mark Foundation for Cancer Research
September 22, 2024
Posted financials
Added Form 990 for fiscal year 2023
September 21, 2024
Updated personnel
Identified 1 new personnel
May 18, 2024
Received grants
Identified 1 new grant, including a grant for $5,485 from American Online Giving Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchReceives government fundingTax deductible donationsAccepts online donations
General information
Address
1482 E Valley Rd Ste 137
Santa Barbara, CA 93108
Metro area
Santa Maria-Santa Barbara, CA
County
Santa Barbara County, CA
Website URL
runx1-fpd.org/ 
Phone
(805) 880-4105
IRS details
EIN
81-3557785
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2016
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - In Process
FTB status revoked
Not revoked
AG Registration Number
CT0249427
FTB Entity ID
3924489
AB 488 data last updated ("as-of") date
2025-08-06
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