Data update history
August 5, 2025
Posted financials
Added Form 990EZ for fiscal year 2024
August 10, 2024
Posted financials
Added Form 990EZ for fiscal year 2023
July 25, 2024
Updated personnel
Identified 1 new personnel
July 22, 2024
Updated personnel
Identified 2 new personnel
July 19, 2024
Posted financials
Added Form 990EZ for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedTax deductible donationsNo full-time employeesAccepts online donations
General information
- Address
- 10708 W 129th St
- Overland Park, KS 66213
- Metro area
- Kansas City, MO-KS
- County
- Johnson County, KS
- Website URL
- rarekc.org/
- Phone
- (913) 220-8177
IRS details
- EIN
- 82-3511792
- Fiscal year end
- December
- Taxreturn type
- Form 990-EZ
- Year formed
- 2018
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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