Program areas at Rare Trait Hope Fund
Per FDA feedback from pre-IND meeting in 2018, we continue production of the gene therapy product that will be used in a clinical trial for AGU treatment. Largest expense for 2022 is the payment for AGA plasmid production and vector production.
AGA plasmid/AAV sequencing and other testing services
AGA drug product vector production feasibility study per proposal from August 11, 2021
Setting up patient registry
Who funds Rare Trait Hope Fund
Grants from foundations and other nonprofits
Personnel at Rare Trait Hope Fund
| Name | Title | Compensation | Date of data |
|---|
| Julia Taravella | Director | $0 | 2023-11-16 |
Financials for Rare Trait Hope Fund
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $260,648 | $410,842 | -36.6% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $260,648 | $410,842 | -36.6% |
Organizations like Rare Trait Hope Fund
| Organization | Type | Location | Revenue |
|---|
| Spiritus Project | 501(c)(3) | Denver, NC | $74,730 |
| Hawaii Parkinson Association | 501(c)(3) | Honolulu, HI | $118,623 |
| Crush MS | 501(c)(3) | Napa, CA | $109,760 |
| Race MD | 501(c)(3) | Portland, OR | $119,186 |
| A Race Worth Winning - ALS | 501(c)(3) | Elko New Market, MN | $76,417 |
| The Cute Syndrome Foundation | 501(c)(3) | Ozark, MO | $352,644 |
| Philadelphia Rheumatism Society | 501(c)(3) | Clarksboro, NJ | $78,253 |
| Friends of the MS Achievement Center | 501(c)(3) | Kansas City, KS | $160,086 |
| Sofies Journey | 501(c)(3) | Irvine, CA | $235,928 |
| Cure Ahc | 501(c)(3) | Rolesville, NC | $126,807 |
Data update history
January 12, 2024
Posted financials
Added Form 990 for fiscal year 2022
January 12, 2024
Updated personnel
Identified 1 new personnel
November 26, 2023
Received grants
Identified 3 new grant, including a grant for $33,054 from PayPal Giving Fund July 29, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 7, 2023
Updated personnel
Identified 2 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchPartially liquidatedTax deductible donationsNo full-time employees
General information
- Address
- 406 Schlief Dr
- Belle Chasse, LA 70037
- Metro area
- New Orleans-Metairie, LA
- County
- Plaquemines Parish, LA
- Website URL
- raretrait.com/Â
IRS details
- EIN
- 46-2762646
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2013
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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