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EIN 13-4019464

Project Als

IRS 501(c) type
501(c)(3)
Num. employees
7
City
New York
State
New York
Year formed
1998
Most recent tax filings
2023-07-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
Project Als works towards understanding and treating Amyotrophic Lateral Sclerosis (Als), also known as Lou Gehrig's Disease. It recruits the world's best research scientists and clinicians to collaborate and share information in order to find effective treatments for this ultimately fatal motor neuron disease. The organization provides funding for scientific medical research and educates people about ALS through speaking engagements, newsletters, and a website. Project Als is based in Huntingtown, MD.
Total revenues
$3,776,913
2023
Total expenses
$4,483,713
2023
Total assets
$1,661,605
2023
Num. employees
7
2023

Program areas at Project Als

Grants and research - funding for scientific medical research to find treatments and ultimately a cure for amyotrophic lateral sclerosis (Als) an ultimately fatal motor neuron disease by promoting collaboration and information sharing among researchers for all related diseases such as parkinson's and multiple sclerosis. Prosetin development for fda submission for clinical drug trial approval.
Education - raise awareness of and provide information about amyotrophic lateral sclerosis (Als) through speaking engagements, newsletter and website.

Grants made by Project Als

GranteeGrant descriptionAmount
University of California San Francisco / Ucsf Payroll OfficeMedical Research$80,000

Who funds Project Als

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Imajnz FoundationMedical Research$482,000
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$216,740
Columbia UniversityProgram Services$110,000
...and 47 more grants received totalling $1,611,661

Personnel at Project Als

NameTitleCompensation
Margot ShanahanExecutive Director
Erin FlemingResearch Consultant$150,385
Valerie EstessValerie Estess Director of Research$194,350
Sage HigginsProject Manager
Gail CarsonController
...and 2 more key personnel

Financials for Project Als

RevenuesFYE 07/2023
Total grants, contributions, etc.$3,777,226
Program services$0
Investment income and dividends$829
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-1,142
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$3,776,913

Form 990s for Project Als

Fiscal year endingDate received by IRSFormPDF link
2023-072024-06-17990View PDF
2022-072023-06-13990View PDF
2021-072022-06-14990View PDF
2020-072022-11-10990View PDF
2020-072021-06-15990View PDF
...and 10 more Form 990s

Organizations like Project Als

OrganizationLocationRevenue
The Cure Starts NowCincinnati, OH$5,080,693
Cure JM FoundationLeesburg, VA$2,318,946
Miles for MigraineJericho, VT$1,647,652
Jett FoundationPlymouth, MA$3,537,013
Cure Sma (CSMA)Elk Grove Village, IL$14,785,235
Dravet Syndrome FoundationCherry Hill, NJ$3,257,096
CURE Epilepsy (CURE)Chicago, IL$6,183,163
Augies Quest to Cure ALSDenver, CO$3,575,831
National Blood Clot AlliancePhiladelphia, PA$1,216,594
Epilepsy Foundation of East TennesseeKnoxville, TN$945,366
Data update history
January 19, 2025
Received grants
Identified 18 new grant, including a grant for $50,000 from Adams Family Foundation
October 23, 2024
Received grants
Identified 3 new grant, including a grant for $100,000 from American Endowment Foundation
August 3, 2024
Posted financials
Added Form 990 for fiscal year 2023
July 17, 2024
Received grants
Identified 6 new grant, including a grant for $110,000 from Columbia University
May 19, 2024
Received grants
Identified 3 new grant, including a grant for $30,000 from The Borman Family Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchFundraising eventsNational levelFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
Address
2585 Broadway Ste 202
New York, NY 10025
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
projectals.org/ 
Phone
(212) 420-7382
IRS details
EIN
13-4019464
Fiscal year end
July
Taxreturn type
Form 990
Year formed
1998
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
California AB-488 details
AB 488 status
May Operate or Solicit for Charitable Purposes
Charity Registration status
Current - Awaiting Reporting
FTB status revoked
Not revoked
AG Registration Number
110729
FTB Entity ID
None yet
AB 488 data last updated ("as-of") date
2025-03-19
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