EIN 22-3611011

Platelet Disorder Support Association

IRS 501(c) type
501(c)(3)
Num. employees
8
State
Year formed
1998
Most recent tax filings
2022-12-01
Description
The Platelet Disorder Support Association enhances the lives of people with immune thrombocytopenia (ITP) and other platelet disorders through education, advocacy, research, and support. In 2022, they hosted in-person events alongside virtual patient connect support group meetings and walk/run events after two years of virtual events due to the coronavirus pandemic.
Total revenues
$1,850,328
2022
Total expenses
$1,213,928
2022
Total assets
$5,188,299
2022
Num. employees
8
2022

Program areas at Platelet Disorder Support Association

2022 was an extremely busy year for pdsa. After two years of virtual meetings and events due to the coronavirus pandemic, pdsa was back to hosting many in-person events, in addition to virtual patient connect Support group meetings and walk/run events. Our first itp conference since 2019 took place in seattle, Washington with more than 160 attendees, and we offered a virtual program of select sessions on the pdsa conference website platform in september - for itp awareness month. The educational sessions were viewed more than 1,000 times. In addition, pdsa hosted a webinar with the itp Support Association in the uk and two world-renowned itp experts in recognition of global itp awareness week. Pdsa also hosted the international itp alliance meeting as part of itp conference 2022. Twelve global ambassadors representing 10 countries participated in the meeting. On the research front, pdsa staff was back to attending, exhibiting and presenting educational programs at a number of scientific/medical meetings including american society of hematology/oncology (asco), Association of pediatric hematology /oncology (aspho), thrombosis and hemostasis societies of north american (thsna), national organization of rare disorders (nord) rare disease summit and the nord living rare, living stronger patient/family forum, and the american society of hematology/oncology annual meeting and exhibition (ash). Pdsa also organized and hosted the ash itp breakfast and icon (itp consortium of north america) annual meeting. Our abstracts on patient quality of life were presented at ash, eha (european hematology/oncology Association) and nord. We funded four innovative patient-centered itp research studies in 2022. Pdsa staff updated two of our booklets: the role and function of platelets and health insurance and assistance programs for itp patients, in addition to creating treatment tables for all available itp treatments, which can be found on our website, pdsa.org. We developed a new program this year, "membership matters" featuring patients and caregivers talking about how pdsa has helped them in their journey with itp. These videos are available on pdsa's social media channels, in addition to pdsa.org. Pdsa staff and our medical advisors continued to answer patient/caregiver calls and emails via our itp helpline. This was all in addition to pdsa's regular programs and resources, including the itp poke-r-club for kids, college scholarship program, updating and translating numerous educational booklets, and producing a 28-page quarterly newsletter and monthly e- newsletter.

Grants made by Platelet Disorder Support Association

GranteeGrant descriptionAmount
Emory UniversityItp Research$20,000
American University (AU)Itp Research$20,000

Who funds Platelet Disorder Support Association

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
The Malcolm Hewitt Wiener FoundationResearch Support, Dr. James Bussel$25,000
American Online Giving FoundationGeneral Support$17,534
The Rachel and Drew Katz FoundationCharitable Donation$10,000
...and 9 more grants received

Personnel at Platelet Disorder Support Association

NameTitleCompensation
Caroline KrusePresident and Chief Executive Officer$174,760
Sue MasonChief Financial Officer
Joan Young, PdsaPdsa Founder
Teri HoweDirector of Development and Communications
Jody ShyDirector of Programs and Events
...and 8 more key personnel

Financials for Platelet Disorder Support Association

RevenuesFYE 12/2022
Total grants, contributions, etc.$1,681,746
Program services$0
Investment income and dividends$15,724
Tax-exempt bond proceeds$0
Royalty revenue$144,600
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$-5,610
Miscellaneous revenues$13,868
Total revenues$1,850,328

Form 990s for Platelet Disorder Support Association

Fiscal year endingDate received by IRSFormPDF link
2022-122023-05-30990View PDF
2021-122022-05-12990View PDF
2020-122021-06-21990View PDF
2019-122020-09-10990View PDF
2018-122019-06-19990View PDF
...and 9 more Form 990s

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Data update history
December 29, 2023
Received grants
Identified 2 new grant, including a grant for $25,000 from The Malcolm Hewitt Wiener Foundation
August 19, 2023
Received grants
Identified 5 new grant, including a grant for $30,000 from Josephine Lawrence Hopkins Foundation
August 13, 2023
Posted financials
Added Form 990 for fiscal year 2021
August 1, 2023
Posted financials
Added Form 990 for fiscal year 2022
May 8, 2023
Received grants
Identified 1 new grant, including a grant for $1,047 from JP Morgan Chase Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthMental healthDiseases and disorders
Characteristics
Political advocacyConducts researchFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
8751 Brecksville Rd
Brecksville, OH 44141
Metro area
Cleveland-Elyria, OH
County
Cuyahoga County, OH
Website URL
pdsa.org/ 
Phone
(440) 746-9003
IRS details
EIN
22-3611011
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1998
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G43: Heart and Circulatory System Diseases, Disorders
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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