Program areas at Platelet Disorder Support Association
2022 was an extremely busy year for pdsa. After two years of virtual meetings and events due to the coronavirus pandemic, pdsa was back to hosting many in-person events, in addition to virtual patient connect Support group meetings and walk/run events. Our first itp conference since 2019 took place in seattle, Washington with more than 160 attendees, and we offered a virtual program of select sessions on the pdsa conference website platform in september - for itp awareness month. The educational sessions were viewed more than 1,000 times. In addition, pdsa hosted a webinar with the itp Support Association in the uk and two world-renowned itp experts in recognition of global itp awareness week. Pdsa also hosted the international itp alliance meeting as part of itp conference 2022. Twelve global ambassadors representing 10 countries participated in the meeting. On the research front, pdsa staff was back to attending, exhibiting and presenting educational programs at a number of scientific/medical meetings including american society of hematology/oncology (asco), Association of pediatric hematology /oncology (aspho), thrombosis and hemostasis societies of north american (thsna), national organization of rare disorders (nord) rare disease summit and the nord living rare, living stronger patient/family forum, and the american society of hematology/oncology annual meeting and exhibition (ash). Pdsa also organized and hosted the ash itp breakfast and icon (itp consortium of north america) annual meeting. Our abstracts on patient quality of life were presented at ash, eha (european hematology/oncology Association) and nord. We funded four innovative patient-centered itp research studies in 2022. Pdsa staff updated two of our booklets: the role and function of platelets and health insurance and assistance programs for itp patients, in addition to creating treatment tables for all available itp treatments, which can be found on our website, pdsa.org. We developed a new program this year, "membership matters" featuring patients and caregivers talking about how pdsa has helped them in their journey with itp. These videos are available on pdsa's social media channels, in addition to pdsa.org. Pdsa staff and our medical advisors continued to answer patient/caregiver calls and emails via our itp helpline. This was all in addition to pdsa's regular programs and resources, including the itp poke-r-club for kids, college scholarship program, updating and translating numerous educational booklets, and producing a 28-page quarterly newsletter and monthly e- newsletter.
Grants made by Platelet Disorder Support Association
Who funds Platelet Disorder Support Association
Grants from foundations and other nonprofits
Personnel at Platelet Disorder Support Association
Name | Title | Compensation | Date of data |
---|
Caroline Kruse | President and Chief Executive Officer | $174,760 | 2023-05-30 |
Sue Mason | Chief Financial Officer | | 2021-11-07 |
Joan Young, Pdsa | Pdsa Founder | | 2021-11-07 |
Teri Howe | Director of Development and Communications | | 2021-11-07 |
Jody Shy | Director of Programs and Events | | 2021-11-07 |
...and 8 more key personnel |
Financials for Platelet Disorder Support Association
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $1,681,746 | $1,740,329 | -3.4% |
Program services | $0 | $0 | - |
Investment income and dividends | $15,724 | $4,293 | 266.3% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $144,600 | $70,700 | 104.5% |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $-5,610 | $2,267 | -347.5% |
Miscellaneous revenues | $13,868 | $2,998 | 362.6% |
Total revenues | $1,850,328 | $1,820,587 | 1.6% |
Organizations like Platelet Disorder Support Association
Organization | Type | Location | Revenue |
---|
Adult Congenital Heart Association (ACHA) | 501(c)(3) | Media, PA | $1,698,174 |
Preeclampsia Foundation | 501(c)(3) | Melbourne, FL | $1,582,437 |
Conquering CHD | 501(c)(3) | Middleton, WI | $645,405 |
Arizona Bleeding Disorders | 501(c)(3) | Phoenix, AZ | $1,135,762 |
The Children's Heart Foundation | 501(c)(3) | Northbrook, IL | $3,888,384 |
TSC Alliance | 501(c)(3) | Silver Spring, MD | $8,909,542 |
Hydrocephalus Association (HA) | 501(c)(3) | Bethesda, MD | $4,148,543 |
Tourette Association of America | 501(c)(3) | Bayside, NY | $4,883,886 |
Gbscidp Foundation International | 501(c)(3) | Conshohocken, PA | $4,567,397 |
American Stroke Foundation | 501(c)(3) | Overland Park, KS | $737,258 |
Data update history
August 13, 2023
Posted financials
Added Form 990 for fiscal year 2021
August 1, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthMental healthDiseases and disorders
Characteristics
Political advocacyConducts researchFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelFundraising races, competitions, and tournamentsTax deductible donations
General information
- Address
- 8751 Brecksville Rd
- Brecksville, OH 44141
- Metro area
- Cleveland-Elyria, OH
- County
- Cuyahoga County, OH
- Website URL
- pdsa.org/Â
- Phone
- (440) 746-9003
IRS details
- EIN
- 22-3611011
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1998
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G43: Heart and Circulatory System Diseases, Disorders
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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