Program areas at Patients Rising
Voices of value is a multi-media hub by Patients for Patients to share knowledge and advocate for the needs of their community. Patients share insights and present the true challenges of living with chronic and life-threatening illnesses.
Patients Rising provides one on one navigation support services for Patients through our concierge helpline. We directly help Patients who call and email with direct support from one of our staff members. This can help them with anything from how to find resources for financial support to how to write a letter to their insurer if they have been denied coverage for a needed treatment.
Patient access and affordability project: we evaluate the various frameworks that assess and demonstrate the value of innovative treatments. These treatments help Patients who are living with rare and chronic diseases. As the market becomes more innovative, we focus on ways to promote access and maintain affordability. We look beyond the one-size-fits-all approach, which can discriminate against Patients. We provide patient-powered pathways to help both the payers and government agencies as they make critical payment decisions for these payments.
Patients Rising learning is a free online educational program developed to help Patients and caregivers build self-advocacy skills, learn about their conditions, navigate healthcare coverage, and ultimately get access to the best care and treatment possible.
Who funds Patients Rising
Grants from foundations and other nonprofits
Personnel at Patients Rising
| Name | Title | Compensation | Date of data |
|---|
| Teressa Wilcox | Executive Director | $178,334 | 2023-05-22 |
| Sarah Furbee | Director of Operations and Finance | | 2022-07-08 |
| Joe Keenan | Director of Digital Product Development and Marketing | | 2022-07-08 |
| Terry Wilcox | Past Executive Director | | 2022-07-08 |
| John Kabateck | Chairman | $0 | 2022-12-31 |
| ...and 1 more key personnel |
Financials for Patients Rising
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $872,251 | $993,326 | -12.2% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $0 | $0 | - |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $872,251 | $993,326 | -12.2% |
Organizations like Patients Rising
| Organization | Type | Location | Revenue |
|---|
| Initium Cares | 501(c)(3) | Denver, CO | $380,097 |
| Sudden Infant Death Services of Illinois | 501(c)(3) | Lisle, IL | $484,922 |
| Maxs Mission | 501(c)(3) | Medford, OR | $1,309,629 |
| Montgomery Area Community Wellness Coalition | 501(c)(3) | Montgomery, AL | $2,409,219 |
| Range of Motion Project NFP | 501(c)(3) | Denver, CO | $1,018,634 |
| Laughter League | 501(c)(3) | Irving, TX | $654,286 |
| Resolve New England | 501(c)(3) | Concord, MA | $225,861 |
| Asheville Buncombe Institue of Parity Achievement | 501(c)(3) | Asheville, NC | $425,432 |
| Everwalk | 501(c)(3) | Los Angeles, CA | $462,205 |
| International Childrens Advisory Network | 501(c)(3) | Marietta, GA | $271,114 |
Data update history
July 11, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 5, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 26, 2023
Received grants
Identified 1 new grant, including a grant for $213,565 from Patients Rising Now May 8, 2023
Used new vendors
Identified 1 new vendor, including
July 18, 2022
Used new vendors
Identified 3 new vendors, including , , and
Nonprofit Types
Social advocacy organizationsPublic health orgsHealth organizationsHeadquarter / parent organizationsCharities
Issues
Health
Characteristics
MembershipsPartially liquidatedReceives government fundingTax deductible donations
General information
- Address
- 700 12th St NW 700
- Washington, DC 20005
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- District of Columbia, DC
- Website URL
- patientsrising.org/wp-content/uploads/2022/07/who-we-are.jpgÂ
- Phone
- (202) 750-1186
IRS details
- EIN
- 47-5016851
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2015
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- E60: Health Support Services
- NAICS code, primary
- 813319: Social Advocacy Organizations
- Parent/child status
- Central organization
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