Cause IQ organization profile

Parkinsons Disease Foundation Incorporated (PDF)

Program areas | Form 990s | Financials | Vendors | Personnel | Peers

PDF is a medical research organization based in Miami, FL that was founded in 1957. As of 2019 they had $33 million in revenue and $37 million in assets.

The Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, education and public advocacy.

Previous legal names or variations of their name include: Parkinsons Disease Foundation.

(212) 923-4700
Fiscal year end:
Revenue trends:
Asset trends:

Program areas at PDF

Pillar 1 - ensuring better care for everyone: we set standards for expert parkinson's care through our global network of 48 centers of excellence. We improve the quality of life for people with pd by tracking the care that they receive at our centers. More than 12,000 patients are enrolled in our parkinson's outcomes project, the largest clinical study of pd. According to our study, regular parkinson's treatment from a neurologist could save thousands of lives each year. We are working to close the gap in parkinson's professional training by educating nurses, physical therapists, occupational therapists, speech language therapists and social workers so they can provide better care.

Pillar 3 - educating and empowering the parkinson's community: we educate and empower people with pd through our national network of staff and volunteers. We were the first organization to form a parkinson's advisory council and the first to train people with pd to partner with scientists on research. We help people live well with pd by providing free resources including: educational books, webinars, podcasts, a life-saving hospitalization kit, and our toll free helpline, staffed by parkinson's specialists who answer nearly 25,000 calls annually.

Pillar 2 - understanding parkinson's through research: we invest more than $10 million annually in promising scientists who are on a mission to understand the basic mechanisms of parkinson's that are critical to developing new treatments and medications. We recruit the most talented minds in parkinson's research by supporting early career scientists in neurology who might choose other fields of study. We identify and address the unmet needs of people with pd by driving cutting-edge research on a wide range of patient-driven topics.

Form 990s for PDF

Fiscal year endingDate received by IRSFormPDF link
2019-06Jan 3, 2020990View PDF
2018-06Dec 22, 2018990View PDF
2017-06Jul 25, 2018990View PDF
2016-06Jun 8, 2017990View PDF
2015-06Jun 22, 2016990View PDF
...and six more Form 990 PDFs

Financials for PDF

Total grants, contributions, etc.$34,038,127
Program services$0
Investment income and dividends$724,044
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$-1,242,942
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$33,519,229

Vendors for PDF

VendorServicesAmount paidDate
BlackbaudCRM software; Marketing software2020-06-16
█████████Fundraising software2020-06-16
██████Content management system software2020-06-16
█████████ ████████Software2019-08-29
████████ █████ █████ ███ █████ ███Tax accounting2018-12-07
███████ █████ █████ ███ ███████Mail Campaign and Printing; Direct Mail Management and Printing$339,9322018-06-01
█████ ██████████████Direct Mail Management and Printing$90,3072018-06-01
███████ ███ ██████████ ███Mail Campaign and Printing; Direct Mail Management and Printing$296,3872018-06-01

Personnel at PDF

NameTitleCompensationMost recent data
John L. LehrPresident and Chief Executive Officer / President and Chief Executive / Board Member$421,724July 17, 2019
Ronnie TodaroChief Operating Officer-July 17, 2019
████████ ██████Senior Vice President and Chief Operating Officer / Vice President , National Programs$206,443June 30, 2019
████ ██ █████Senior Vice President and Chief Financial Officer / Senior Vice President , Chief Financial Officer / Assistant Secretary-Jan. 3, 2020
██████ ██ █████Senior Vice President and Chief Financial Officer$178,366June 30, 2019
███████ █████Vice President, Chief Communications Officer$163,200July 17, 2019
████ ██████Senior Vice President, Chief Development Officer$211,144July 17, 2019
█████ ████Senior Vice President, Chief Scientific Officer$193,236July 17, 2019
████████ ██████████Vice President, Human Resources and Administration$154,461July 17, 2019
████ ███████████Vice President , Development Initiative$126,827June 30, 2019
...and 11 more key personnel

Peer medical research organizations

1COPD Foundation501(c)(3)$10 millionCoral Gables, FL
2AlphaNet Incorporated501(c)(3)$14 millionMiami, FL
3American College of Gastroenterology (ACG)501(c)(3)$34 millionBethesda, MD
4PKD Foundation501(c)(3)$12 millionKansas City, MO
5Joslin Diabetes Center501(c)(3)$98 millionBoston, MA
6Cohen Veterans Bioscience501(c)(3)$16 millionCambridge, MA
7Jeffrey Modell Foundation (JMF)501(c)(3)$11 millionNew York, NY
8New York Stem Cell Foundation (NYSCF)501(c)(3)$38 millionNew York, NY
9Foundation Fighting Blindness (FFB)501(c)(3)$53 millionColumbia, MD
10Sun Health Research Institute501(c)(3)$11 millionPhoenix, AZ
11Alpha-1 Foundation501(c)(3)$10 millionMiami, FL
12Schepens Eye Research Institute501(c)(3)$28 millionBoston, MA
13Medical University of Warsaw501(c)(3)$120 millionPoland,
14Atlas Network501(c)(3)$15 millionArlington, VA
15Colorado State University Research Foundation501(c)(3)$11 millionFort Collins, CO
16Christopher and Dana Reeve Foundation501(c)(3)$12 millionShort Hills, NJ
17Northwestern Management Services501(c)(3)$8.5 millionChicago, IL
18American Parkinson Disease Association (APDA)501(c)(3)$10 millionStaten Island, NY
19Cystic Fibrosis Foundation - Group Return for the Chapters501(c)(3)$113 millionBethesda, MD
20Muscular Dystrophy Association501(c)(3)$110 millionChicago, IL
21Arthritis Foundation501(c)(3)$86 millionAtlanta, GA
22ALS Association (ALS)501(c)(3)$27 millionWashington, DC
23Parent Project Muscular Dystrophy (PPMD)501(c)(3)$9.0 millionHackensack, NJ
24New York Genome Center (NYGC)501(c)(3)$128 millionNew York, NY
25American Liver Foundation (ALF)501(c)(3)$9.1 millionNew York, NY