Program areas at Neuroimmune Foundation
Physician education put into place a brand new, comprehensive educational model in collaboration with project echo with accredited cme designed to equip physicians to evaluate and treat Children, youth, and adults with psychiatric symptoms due to an underlying Neuroimmune condition (pans, pandas, encephalitis, etc). The cme program features one-hour weekly meetings featuring short didactics by 8 world-renowned expert physicians from leading university programs followed by case presentations. Detailed treatment and diagnosis guides to support physicians as well as free continuing medical education, and free access to expert consultation panel reached over 10,000 physicians in the united states and abroad. Continued sustained outreach to 150+ residency programs in the us with free accredited continuing medical education. We have now educated 6500+ clinicians in 70+ countries around the world with accredited cme - 90% of them completely free of charge in an effort to improve patient outcomes. Expenses included accreditation, marketing, platform fees, honorarium, printing, and a robust outreach.
Funded a biostatistician at harvard to complete work on arfid related to pans.
Offered free support and high quality education to 30k + patients and families. Connected 2000+ patients/families with clinicians and grew our network of clinicians who can support patients/families. Family support programs included running a private group for 6500 patients and families, providing moderation and support in that group, responding to emails to assist with finding physicians, providing educational webinars with therapists and physicians. Costs included platform fees, honorarium, materials.
Grants made by Neuroimmune Foundation
Grantee | Grant description | Grant year | Amount |
---|
The Alex Manfull Fund | To Fund A Biostatistician at Harvard University To Complete Work on Arfid Related To Pans. | 2024-12 | $10,000 |
Who funds Neuroimmune Foundation
Grants from foundations and other nonprofits
Personnel at Neuroimmune Foundation
Name | Title | Compensation | Date of data |
---|
Johanna Conkey | President | $116,667 | 2024-12-31 |
Financials for Neuroimmune Foundation
Revenues | FYE 12/2024 | FYE 12/2023 | % Change |
---|
Total grants, contributions, etc. | $379,294 | $677,116 | -44% |
Program services | $173,659 | $159,042 | 9.2% |
Investment income and dividends | $34,580 | $12,929 | 167.5% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $587,533 | $849,087 | -30.8% |
Organizations like Neuroimmune Foundation
Organization | Type | Location | Revenue |
---|
International Foundation for Gastrointestinal Disorders | 501(c)(3) | MT Pleasant, SC | $745,241 |
Sepsis Alliance | 501(c)(3) | San Diego, CA | $2,227,105 |
Combinedbrain | 501(c)(3) | Brentwood, TN | $1,142,743 |
Brain Injury Association of Michigan | 501(c)(3) | Brighton, MI | $501,224 |
Reel Recovery | 501(c)(3) | Needham, MA | $643,859 |
Hypersomnia Foundation | 501(c)(3) | Atlanta, GA | $917,170 |
American Syringomyelia and Chiari Alliance Project | 501(c)(3) | Longview, TX | $887,640 |
Pandas Networkorg | 501(c)(3) | Menlo Park, CA | $204,601 |
The Mastocytosis Cell Disease Society | 501(c)(3) | Sterling, MA | $466,123 |
International Association for Spelling as Communication | 501(c)(3) | Herndon, VA | $772,763 |
Data update history
January 17, 2025
Posted financials
Added Form 990 for fiscal year 2023
January 4, 2025
Received grants
Identified 1 new grant, including a grant for $11,356 from PayPal Giving Fund December 17, 2024
Updated personnel
Identified 1 new personnel
August 24, 2024
Posted financials
Added Form 990 for fiscal year 2021
July 13, 2024
Received grants
Nonprofit Types
Grantmaking organizationsDisease research fundraisersProfessional associationsDisease-focused nonprofitsCharities
Issues
HealthMedical disciplines
Characteristics
MembershipsConducts researchNational levelReceives government fundingTax deductible donationsAccepts online donations
General information
- Address
- 135 Jenkins St 105-b PMB 117
- St Augustine, FL 32086
- Metro area
- Jacksonville, FL
- County
- St. Johns County, FL
- Website URL
- neuroimmune.org/Â
- Phone
- (608) 381-0367
IRS details
- EIN
- 82-3128162
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 2017
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G90: Medical Disciplines
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0276174
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2025-03-19
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