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EIN 04-3030760

Neurofibromatosis Network

IRS 501(c) type
501(c)(3)
Num. employees
5
City
Wheaton
State
Illinois
Year formed
1990
Most recent tax filings
2022-09-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
Neurofibromatosis Network provides information about the disorder Neurofibromatosis to those affected and helps families find medical, social, and genetic counseling. The organization also raises and seeks funds for research towards a cure.
Total revenues
$548,640
2022
Total expenses
$377,639
2022
Total assets
$1,209,936
2022
Num. employees
5
2022

Program areas at Neurofibromatosis Network

To provide those with Neurofibromatosis with information about the disorder and help families find medical, social, and genetic counseling. To raise and seek funds for research for a cure.

Grants made by Neurofibromatosis Network

GranteeGrant descriptionAmount
University of Wisconsin Naval Reserve Officers Training CorpsFor Research$45,000

Who funds Neurofibromatosis Network

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Give Back FoundationProgram Support$7,256
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$6,800
Valiant FoundationGeneral$1,000
...and 1 more grant received

Personnel at Neurofibromatosis Network

NameTitleCompensation
Kim BischoffExecutive Director
Jeff LeibowProducer and Director of Development, NF
Mike OntgomeryDirector
Gregg EricksonTreasurer$0
John ManthVice President / Board Member$0
...and 2 more key personnel

Financials for Neurofibromatosis Network

RevenuesFYE 09/2022
Total grants, contributions, etc.$226,830
Program services$0
Investment income and dividends$41,711
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$280,099
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$548,640

Form 990s for Neurofibromatosis Network

Fiscal year endingDate received by IRSFormPDF link
2022-092023-08-15990View PDF
2021-092022-11-02990View PDF
2020-092021-09-03990View PDF
2019-092020-12-30990View PDF
2018-092019-10-31990View PDF
...and 10 more Form 990s
Data update history
November 27, 2023
Received grants
Identified 1 new grant, including a grant for $7,256 from Give Back Foundation
October 4, 2023
Updated personnel
Identified 3 new personnel
October 3, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 14, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 4, 2023
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchLobbyingFundraising eventsTax deductible donations
General information
Address
PO Box 1530
Wheaton, IL 60187
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
County
DuPage County, IL
Website URL
nfnetwork.org/ 
Phone
(630) 510-1115
IRS details
EIN
04-3030760
Fiscal year end
September
Taxreturn type
Form 990
Year formed
1990
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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