1. Directory
  2. Illinois
  3. Saint Charles
  4. Neurofibromatosis Midwest
EIN 22-2580173

Neurofibromatosis Midwest

IRS 501(c) type
501(c)(3)
Num. employees
6
City
Saint Charles
State
Illinois
Year formed
1981
Most recent tax filings
2022-09-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
To improve the lives of children, adults, and families impacted by Neurofibromatosis by focusing on and improving clinics, awareness, research, education and support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri. Education and support for those with Neurofibromatosis.
Total revenues
$220,690
2022
Total expenses
$218,142
2022
Total assets
$317,579
2022
Num. employees
6
2022

Program areas at Neurofibromatosis Midwest

Research/clinics/improved care Neurofibromatosis Midwest provides direct grants for research and research support. We also work with clinics in our region to improve care and access to care. Additionally, we work with the nf community and many other resources on additional programs or initiatives to improve the quality of life and care for nf patients and their families.
Support/education/awareness Neurofibromatosis Midwest provides education to individuals and families with Neurofibromatosis, to the medical community and to the public through an annual symposium; smaller local meetings; and printed and online materials. We provide free packets of information to newly diagnosed families and phone and online support. An annual grant is provided to send children with nf to camp. We also provide materials and opportunities to raise awareness.

Grants made by Neurofibromatosis Midwest

GranteeGrant descriptionAmount
University of Chicago Medical CenterMaintain Studies$34,000
Brainy Camps Children's NationalSummer Camp$12,500
University of Minnesota Foundation (UMF)Maintain Studies$6,250

Who funds Neurofibromatosis Midwest

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
John Marshall Family FoundationUnrestricted$1,000
Duke Energy FoundationMatching Gifts$100

Personnel at Neurofibromatosis Midwest

NameTitleCompensation
Diana HaberkampExecutive Director$0
Dena HasselbergSecretary$0
Denise DulceakBoard Chair$0
Peter OswaldVice Chair$0
Gordon CummingsTreasurer$0

Financials for Neurofibromatosis Midwest

RevenuesFYE 09/2022
Total grants, contributions, etc.$183,921
Program services$0
Investment income and dividends$3,042
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$32,499
Net income from gaming activities$0
Net income from sales of inventory$1,227
Miscellaneous revenues$1
Total revenues$220,690

Form 990s for Neurofibromatosis Midwest

Fiscal year endingDate received by IRSFormPDF link
2020-092021-04-12990View PDF
2019-092020-09-29990View PDF
2018-092019-09-14990View PDF
2017-092018-08-17990View PDF
2016-092017-04-20990View PDF
...and 6 more Form 990s
Data update history
May 10, 2023
Received grants
Identified 1 new grant, including a grant for $1,000 from John Marshall Family Foundation
August 21, 2021
Posted financials
Added Form 990 for fiscal year 2019
June 24, 2021
Posted financials
Added Form 990 for fiscal year 2020
October 30, 2020
Updated personnel
Identified 1 new personnel
September 30, 2020
Posted financials
Added Form 990 for fiscal year 2018
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchLobbyingFundraising eventsNational levelEndowed supportProvides scholarshipsTax deductible donations
General information
Address
473 Dunham Rd Suite 3
Saint Charles, IL 60174
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
County
Kane County, IL
Website URL
nfmidwest.org/ 
Phone
(630) 945-3562
IRS details
EIN
22-2580173
Fiscal year end
September
Taxreturn type
Form 990
Year formed
1981
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
Free account sign-up

Want updates when Neurofibromatosis Midwest has new information, or want to find more organizations like Neurofibromatosis Midwest?

Create free Cause IQ account
Cause IQ is a website that helps companies grow, maintain, and serve their nonprofit clients, and helps nonprofits find additional foundation funding. Our data and tools help professionals prospect for nonprofits, research opportunities, benchmark their clients, and enrich existing information.
Nonprofits
Product
Customers
About

© 2024 Nonprofit Metrics LLC
Terms of Service and Privacy Policy