Program areas at NGF
Support of the care program, which grants funds to approximately 250 individuals, to subsidize, or to purchase in full, a health insurance policy (primary, secondary or both), to which the patient is entitled or eligible, but for which the patient does not have adequate personal resources to enroll.
Education and awareness initiatives throughout the u.s. The program includes a website with expansive content that is regularly updated, monthly blog posts on Gaucher disease from medical thought leaders, monthly e-newsletters, human interest stories in film, digital and written materials,an annual educational symposium for patients and physicians, a carrier screening program as well as services to patients (with information, support,and resources) to help them achieve and maintain their optimal health.
Who funds National Gaucher Foundation (NGF)
Grants from foundations and other nonprofits
Personnel at NGF
| Name | Title | Compensation | Date of data |
|---|
| Amy Blum | Chief Operating Officer | $111,519 | 2022-12-31 |
| Brian Berman | President | $0 | 2023-09-14 |
| Dennis L Berman | Treasurer | $0 | 2022-12-31 |
| Robin A Ely | Director | $0 | 2022-12-31 |
| Rhonda Buyers | Past Former Chief Executive Officer and Executive Director | $98,250 | 2016-05-31 |
Financials for NGF
| Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
|---|
| Total grants, contributions, etc. | $1,158,055 | $2,238,957 | -48.3% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $150 | $3,579 | -95.8% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $1,158,205 | $2,242,536 | -48.4% |
Organizations like NGF
| Organization | Type | Location | Revenue |
|---|
| PC Project | 501(c)(3) | Holladay, UT | $654,819 |
| Children's Diabetes Foundation | 501(c)(3) | Aurora, CO | $4,370,506 |
| Foundation for Prader Willi Research (FPWR) | 501(c)(3) | Covina, CA | $5,083,937 |
| Bay Area Lyme Foundation | 501(c)(3) | Portola Valley, CA | $3,112,927 |
| Parkinsons Unity Walk | 501(c)(3) | Kingston, NJ | $1,360,764 |
| Cloves Syndrome Community | 501(c)(3) | West Kennebunk, ME | $310,706 |
| National MPS Society | 501(c)(3) | Durham, NC | $1,837,186 |
| HHV-6 Foundation | 501(c)(3) | Santa Barbara, CA | $326,444 |
| United MSD Foundation | 501(c)(3) | Ocean Springs, MS | $720,064 |
| Diabetes Empowerment International Foundation | 501(c)(3) | New York, NY | $290,305 |
Data update history
October 28, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 21, 2023
Received grants
Identified 1 new grant, including a grant for $4,200 from Dawe Family Foundation August 17, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 12, 2022
Posted financials
Added Form 990 for fiscal year 2020
June 12, 2022
Posted financials
Added Form 990 for fiscal year 2019
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
Provides grantsConducts researchTax deductible donations
General information
- Address
- 5410 Edson LN Suite 220
- Rockville, MD 20852
- Metro area
- Washington-Arlington-Alexandria, DC-VA-MD-WV
- County
- Montgomery County, MD
- Website URL
- gaucherdisease.org/Â
- Phone
- (800) 504-3189
- Facebook page
- National-Gaucher-FoundationÂ
- Twitter profile
- @ngf_gaucherÂ
IRS details
- EIN
- 52-1350226
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1984
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G80: Specifically Named Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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