Cause IQ organization profile

National Brain Tumor Society (NBTS)

Program areas | Form 990s | Financials | Vendors | Personnel | Peers

NBTS is a medical practice research organization based in Newton, MA that was founded in 1989. As of 2020 they had $14 million in revenue and $7.7 million in assets.

National Brain Tumor Society is fiercely committed to finding better treatments, and ultimately a cure, for people living with a brain tumor today and anyone who will be diagnosed tomorrow. This means effecting change in the system at all levels.

EIN:
04-3068130
City:
State:
Metro:
Website:
Phone:
617 924 9997
Facebook:
Twitter:
Founded:
1989
Type:
501(c)(3)
NTEE:
Revenue:
$14,164,709
Assets:
$7,787,968
Employees:
55
Fiscal year end:
December
Revenue trends:
Asset trends:

Program areas at NBTS

Research: National Brain Tumor Society (nbts) throughout its history has funded some of the most important discoveries that have led to the advancement of Brain Tumor research. Today, nbts is funding innovative team-science initiatives including the defeat gbm research collaborative and the defeat pediatric Brain tumors research collaborative. Our "defeat" programs bring together world-renown institutions to accelerate the pace of research by requiring data sharing and the rapid movement of discoveries to be translated into potential new treatments. In just three years defeat gbm discovered four potential new treatments for gbm and has screened thousands of existing drugs for potential benefit. Nbts is also funding outstanding low-grade Brain Tumor research. It also hosts a unique research roundtable of research leaders committed to eliminating the barriers to progress.

Information, awareness and remembrance: nbts is committed to helping patients and care partners obtain essential information from the time of diagnosis including information about treatment options and clinical trials. Through its Brain Tumor experience website, nbts provides, to many across the u.s. and globally, timely information and is available by phone to help connect to treatments centers and support services. It also helps patients find clinical trials through the nbts clinical trials finder on our website and through the regular nbts clinical trials report. Nbts also connects patients to each other through regional events and helps families honor their loved ones. The events provide access to treatment providers for families and friends, and help make the broader public more aware of our cause through communications programs.

Public policy & advocacy: nbts is well-recognized as a leader in public policy related to Brain tumors and cancer generally. Each year we advance a specific policy agenda with congress and the executive branch to improve patients lives and the likelihood of the development of new treatments. Nbts advocacy efforts have led to greater federal investment in Brain Tumor research and improved policies that speed the research process. Through advocacy patients and their families, and researchers also have a voice and can come to Washington dc for our signature head to the hill held annually.

Form 990s for NBTS

Fiscal year endingDate received by IRSFormPDF link
2019-12Oct 16, 2020990View PDF
2018-12Aug 16, 2019990View PDF
2017-12Nov 15, 2018990View PDF
2016-12Jan 18, 2018990View PDF
2015-12Jul 14, 2017990View PDF
...and eight more Form 990 PDFs

Financials for NBTS

Field2019
Total grants, contributions, etc.$14,128,145
Program services$0
Investment income and dividends$33,770
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$2,794
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$14,164,709

Vendors for NBTS

VendorServicesAmount paidDate
BlackbaudFundraising software; CRM software; Marketing software2020-06-16
██████Fundraising software2020-06-16
██████Fundraising software2020-06-16
███████ ███ ████Fundraising software; Payment processing2020-06-16
█████████Content management system software2020-06-16
█████████ ███████ ███████ ███ ██ ██Tax accounting2020-04-20
████ ███████████ ███It Consulting$114,9552019-12-01
██████ ███Software2019-09-19

Personnel at NBTS

NameTitleCompensationMost recent data
David F. Arons JDChief Executive Officer$225,487Dec. 31, 2019
Steve GallucciChief Financial Officer$132,664Oct. 16, 2020
████████ ██████ ███Chief of Community and Government Relations-Oct. 3, 2020
███████ ██████████Chief Marketing Officer$125,702Jan. 8, 2019
██████ █████ ████Chief Development Officer$195,222Oct. 3, 2020
████ ██████Chief Scientific Officer$189,244Oct. 3, 2020
██████ ████████Senior Director of Human Resources and Operations-Oct. 3, 2020
██████ ███████Senior Director of Regional Development East / Regional Director of Development , Northeast$114,755Dec. 31, 2019
████ █████Senior Director of Development Operations$113,125Dec. 31, 2019
████████ ██████Director, Research and Program Partnerships-Jan. 8, 2019
...and 15 more key personnel

Peer medical discipline research centers

 NameTypeRevenueLocation
1FSHD Society501(c)(3)$5.2 millionLexington, MA
2ALS Therapy Development Institute501(c)(3)$15 millionCambridge, MA
3Lumind Research Down Syndrome Foundation501(c)(3)$3.6 millionBurlington, MA
4The Forsyth Institute501(c)(3)$18 millionCambridge, MA
5Huntington Medical Research Institute501(c)(3)$9.4 millionPasadena, CA
6Burke Neurological Institute501(c)(3)$17 millionWhite Plains, NY
7Research to Prevent Blindness (RPB)501(c)(3)$5.3 millionNew York, NY
8Sansum Diabetes Research Institute501(c)(3)$4.2 millionSanta Barbara, CA
9Foundation for Orthopaedic Research and Education501(c)(3)$5.9 millionTampa, FL
10Arthritis Foundation Mid Atlantic Region501(c)(3)$4.8 millionAtlanta, GA
11Arthritis Foundation Florida Chapter501(c)(3)$4.3 millionAtlanta, GA
12PKD Foundation501(c)(3)$6.7 millionKansas City, MO
13Seattle Science Foundation501(c)(3)$4.7 millionSeattle, WA
14Children's Hospital Radiology Foundation501(c)(3)$38 millionBoston, MA
15Children's Diabetes Foundation501(c)(3)$3.9 millionDenver, CO
16Arthritis Foundation New England Region501(c)(3)$4.6 millionNewton, MA
17CHMC Cardiovascular Surgical Foundation Incorporated501(c)(3)$20 millionBoston, MA
18CH Neurology Foundation501(c)(3)$42 millionBoston, MA
19CHMC Surgical Foundation501(c)(3)$35 millionBoston, MA
20Children's Hospital Ophthalmology Foundation (CHOF)501(c)(3)$25 millionBoston, MA
21Children's Hospital Pathology Foundation501(c)(3)$12 millionBoston, MA
22CHMC Otolaryngologic Foundation501(c)(3)$33 millionBoston, MA
23Proteogenomics Research Institute for Systems Medicine501(c)(3)$4.7 millionSan Diego, CA
24Arkansas Children's Research Institute501(c)(3)$32 millionLittle Rock, AR
25American Thrombosis and Hemostasis Network (ATHN)501(c)(3)$11 millionRochester, NY