EIN 16-1646154

National Association of Councils on Developmental Disabilities

IRS 501(c) type
501(c)(3)
Num. employees
7
Year formed
2002
Most recent tax filings
2022-09-01
NTEE code, primary
Description
National Association of Councils on Developmental Disabilities promotes the interests of people with developmental disabilities and their families by providing national leadership. It serves as the united voice representing councils on developmental disabilities. The association provides technical assistance to state councils based on their specific needs, and also represents their interests at the federal level with congress and the administration. It keeps councils informed about national policies affecting them. The association is located in Washington, DC.
Total revenues
$1,840,311
2022
Total expenses
$1,967,929
2022
Total assets
$891,739
2022
Num. employees
7
2022

Program areas at National Association of Councils on Developmental Disabilities

Technical assistance: nacdd provided technical assistance to state Councils on Developmental Disabilities. Each council determined its own needs, and consequently, the types and duration of the assistance varied from council to council. Nacdd also provided telephone advice to Councils on compliance and management issues. Technical assistance is funded by a contract from the administration on Developmental Disabilities, department of health and human services.
Bridging aging and disability networks: the National Association of Councils on Developmental Disabilities, in partnership with the institute on disability and human development at the university of Illinois chicago, lurie institute for disability policy at brandeis university, the arc, and National Association of area agencies on aging, seeks to strengthen the collaboration between aging and disability networks to better support individuals with intellectual and Developmental Disabilities (i/dd) and their families in future planning. We will leverage our collective expertise in aging, disability, and future planning to: 1) build capacity across and within states' aging and disability networks to provide coordinated services and supports that address the needs of aging adults with i/dd and their families as they plan for future care; and 2) support, sustain, and replicate emerging and promising practices and policies in states that support the unique needs and preference of adults aging with i/dd and their families to aid them in planning for the future. Because of this project: 1) states will have a more established, culturally competent infrastructure that addresses future planning and more effectively responds to the unique needs of diverse families; 2) older adults with i/dd will be living in the community with supports that reflect their needs, wants, and cultural preferences; and 3) more policies will be changed to enable more coordinated access across aging and disability networks that improves the experience of people with i/dd and their families as they age. New resources will include a website, promising practices report, and additional materials in plain language and other languages, as determined by states' needs with input from a partnership council.
Council services: served the needs of Councils by assisting them with their internal operations and state systems issues; annual summer conferences; produced council services newsletter; maintained the nacdd web page; provided on-site, in-service training for council orientation and other programmatic needs; and conducted special projects.
Public policy: represented the interests of Developmental Disabilities Councils and people with Developmental Disabilities at the federal level, with congress and the administration; kept Councils informed about National policies that affect them and their constituents, and ensured the continuation and enforcement of the Developmental Disabilities act.

Who funds National Association of Councils on Developmental Disabilities

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Joseph P Kennedy Jr FoundationGrant Will Provide Financial Support for A Domestic Public Policy Fellowship. the Fellow Will Work Under the Direction of the Joseph P. Kennedy JR. Foundation.$205,000
USAgingServices for the Aging Grant$25,000
Pharmaceutical Research and Manufacturers of of America (PHRMA)General Contribution$20,000

Personnel at National Association of Councils on Developmental Disabilities

NameTitleCompensation
Donna MeltzerExecutive Director$197,128
Dan ShannonVice President / Board Treasurer$0
Kim Mercer-SchleiderVice President / Director$0
Julie HorntvedtPast Treasurer$0
Vicky DavidsonSecretary / Director / Board Member$0
...and 7 more key personnel

Financials for National Association of Councils on Developmental Disabilities

RevenuesFYE 09/2022
Total grants, contributions, etc.$1,141,243
Program services$690,222
Investment income and dividends$3,077
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$5,077
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$692
Total revenues$1,840,311

Form 990s for National Association of Councils on Developmental Disabilities

Fiscal year endingDate received by IRSFormPDF link
2022-092023-08-03990View PDF
2021-092022-06-10990View PDF
2020-092021-04-13990View PDF
2019-092020-09-18990View PDF
2018-092019-12-13990View PDF
...and 10 more Form 990s
Data update history
September 28, 2023
Updated personnel
Identified 1 new personnel
September 27, 2023
Posted financials
Added Form 990 for fiscal year 2022
September 24, 2023
Received grants
Identified 1 new grant, including a grant for $205,000 from Joseph P Kennedy Jr Foundation
August 12, 2023
Posted financials
Added Form 990 for fiscal year 2021
May 22, 2023
Received grants
Identified 2 new grant, including a grant for $57,500 from Pharmaceutical Research and Manufacturers of America (PhRMA)
Nonprofit Types
Professional associationsBusiness and community development organizationsDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersCommunity improvementAutismBusiness and industry
Characteristics
MembershipsPolitical advocacyLobbyingState / local levelReceives government fundingTax deductible donations
General information
Address
1825 K St 600
Washington, DC 20006
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
District of Columbia, DC
Website URL
nacdd.org/ 
Phone
(202) 506-5813
IRS details
EIN
16-1646154
Fiscal year end
September
Taxreturn type
Form 990
Year formed
2002
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G84: Autism
NAICS code, primary
813920: Professional Associations
Parent/child status
Independent
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