EIN 47-4011296

The Myalgic Encephalomyelitis Action Network

IRS 501(c) type
501(c)(3)
Num. employees
9
Year formed
2014
Most recent tax filings
2022-09-01
Description
The Myalgic Encephalomyelitis Action Network aims to build a global movement that fights for recognition, education, and research to ensure all individuals with ME have access to compassionate and effective care. Advocacy is a cornerstone of their work, and they take decisive steps each year to strengthen their voice with the US government through institutions such as the National Institute of Health and the Center for Disease Control and Prevention. Their #MillionsMissing campaign is a global effort aimed at raising awareness and advocating for action on behalf of ME/CFS patients.
Total revenues
$709,587
2022
Total expenses
$653,091
2022
Total assets
$43,019
2022
Num. employees
9
2022

Program areas at The Myalgic Encephalomyelitis Action Network

Research and medical:we aim to grow The scientific field through outreach, education and patient-driven research so that treatments, diagnosis, and outcomes can improve for people with me.
#millionsmissing:#millionsmissing is our global effort to raise awareness and achieve rights for me/cfs patients. Since 2016, we have banded together every year to raise awareness and advocate for Action.
Digital advocacy and awareness:advocacy is a cornerstone of our work at #meaction. Every year, we take decisive steps to strengthen our voice with The us government through The national institute of health, The center for disease control & prevention, and The department of health and human services. We urge each agency to prioritize The health of people with me through accelerated research, clinical education, and a dedicated search for an fda-approved treatment. Influenced by The hiv/aids movement, our advocacy activities include participation in government committees, published petitions, open letters, meetings, peaceful protests, press conferences, advocacy days and more.

Who funds The Myalgic Encephalomyelitis Action Network

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Schwab Charitable FundHealth$65,800
Mayo ClinicSupport Charitable Programs$20,350
American Online Giving FoundationGeneral Support$14,297
...and 2 more grants received

Personnel at The Myalgic Encephalomyelitis Action Network

NameTitleCompensation
Julie MieleExecutive Director$104,461
Jaime SeltzerDirector of Scientific and Medical Outreach
Steven MolonyCommunications Manager
Michelle PinedoTreasurer$0
Judy GayerSecretary$0
...and 2 more key personnel

Financials for The Myalgic Encephalomyelitis Action Network

RevenuesFYE 09/2022
Total grants, contributions, etc.$709,854
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$-267
Total revenues$709,587

Form 990s for The Myalgic Encephalomyelitis Action Network

Fiscal year endingDate received by IRSFormPDF link
2022-092023-10-16990View PDF
2021-092022-08-15990View PDF
2020-092021-08-16990View PDF
2018-122021-12-29990View PDF

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Data update history
December 25, 2023
Received grants
Identified 1 new grant, including a grant for $20,350 from Mayo Clinic
November 29, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 28, 2023
Updated personnel
Identified 1 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 13, 2023
Received grants
Identified 3 new grant, including a grant for $14,297 from American Online Giving Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchNational levelReceives government fundingTax deductible donations
General information
Address
1217 Wilshire Blvd 3639
Santa Monica, CA 90403
Metro area
Los Angeles-Long Beach-Anaheim, CA
County
Los Angeles County, CA
Website URL
meaction.net/ 
Phone
(626) 354-7833
IRS details
EIN
47-4011296
Fiscal year end
September
Taxreturn type
Form 990
Year formed
2014
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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