Program areas at The Myalgic Encephalomyelitis Action Network
Research and medical:we aim to grow The scientific field through outreach, education and patient-driven research so that treatments, diagnosis, and outcomes can improve for people with me.
#millionsmissing:#millionsmissing is our global effort to raise awareness and achieve rights for me/cfs patients. Since 2016, we have banded together every year to raise awareness and advocate for Action.
Digital advocacy and awareness:advocacy is a cornerstone of our work at #meaction. Every year, we take decisive steps to strengthen our voice with The us government through The national institute of health, The center for disease control & prevention, and The department of health and human services. We urge each agency to prioritize The health of people with me through accelerated research, clinical education, and a dedicated search for an fda-approved treatment. Influenced by The hiv/aids movement, our advocacy activities include participation in government committees, published petitions, open letters, meetings, peaceful protests, press conferences, advocacy days and more.
Who funds The Myalgic Encephalomyelitis Action Network
Grants from foundations and other nonprofits
Personnel at The Myalgic Encephalomyelitis Action Network
Name | Title | Compensation | Date of data |
---|
Julie Miele | Executive Director | $104,461 | 2022-09-30 |
Jaime Seltzer | Director of Scientific and Medical Outreach | | 2022-08-09 |
Steven Molony | Communications Manager | | 2022-08-09 |
Michelle Pinedo | Treasurer | $0 | 2023-10-16 |
Judy Gayer | Secretary | $0 | 2022-09-30 |
...and 2 more key personnel |
Financials for The Myalgic Encephalomyelitis Action Network
Revenues | FYE 09/2022 | FYE 09/2021 | % Change |
---|
Total grants, contributions, etc. | $709,854 | $582,162 | 21.9% |
Program services | $0 | $0 | - |
Investment income and dividends | $0 | $16 | -100% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $-267 | $0 | -999% |
Total revenues | $709,587 | $582,178 | 21.9% |
Organizations like The Myalgic Encephalomyelitis Action Network
Organization | Type | Location | Revenue |
---|
Uplifting Athletes | 501(c)(3) | Doylestown, PA | $1,116,184 |
FSHD Society | 501(c)(3) | Randolph, MA | $3,508,920 |
Arthritis Foundation Upper Midwest Region | 501(c)(3) | St Paul, MN | $2,891,319 |
Epilepsy Foundation of Greater Chicago | 501(c)(3) | Chicago, IL | $2,363,979 |
Spinal Cord Society | 501(c)(3) | Fergus Falls, MN | $264,633 |
Pennsylvania Tourette Syndrome Alliance | 501(c)(3) | Hanover, PA | $237,405 |
International Pemphigus Pemphigoid Foundation | 501(c)(3) | Roseville, CA | $558,222 |
Davis Phinney Foundation | 501(c)(3) | Louisville, CO | $2,944,853 |
I Am Als | 501(c)(3) | Washington, DC | $1,631,851 |
Unite 2 Fight Paralysis | 501(c)(3) | Minneapolis, MN | $389,921 |
Data update history
December 25, 2023
Received grants
Identified 1 new grant, including a grant for $20,350 from Mayo Clinic November 29, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 28, 2023
Updated personnel
Identified 1 new personnel
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Political advocacyConducts researchNational levelReceives government fundingTax deductible donations
General information
- Address
- 1217 Wilshire Blvd 3639
- Santa Monica, CA 90403
- Metro area
- Los Angeles-Long Beach-Anaheim, CA
- County
- Los Angeles County, CA
- Website URL
- meaction.net/Â
- Phone
- (626) 354-7833
IRS details
- EIN
- 47-4011296
- Fiscal year end
- September
- Taxreturn type
- Form 990
- Year formed
- 2014
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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