Program areas at MDS Foundation / The Myelodysplastic Syndromes Foundation
The Foundation continued its extensive patient advocacy outreach initiatives in 2023. The Foundation staff communicates daily with patients and caregivers providing support and education regarding The Myelodysplastic Syndromes in The following formats: patient information via The foundations "building blocks of hope" initiative, MDS Foundation newsletters, and through The MDS Foundation website and social media campaigns. On-site patient liason support is also provided including referrals to The MDS centers of excellence, providing information on current treatment options and available clinical trials, responses to email and social media inquiries, and providing a connection between MDS patients upon request.
The MDS Foundation provides research grants for scientific investigators. The Foundation is dedicated to furthering The research into MDS and will invite young investigators to submit proposals for either basic research or clinical management into The causation, epidemiology, molecular biology, cytogenetics, morphology, prognosis and management of The Myelodysplastic Syndromes. In addition, The Foundation sponsors international working groups of scientists and physicians to further diagnostic, prognostic and treatment techniques. The Foundation has also established a procedure for creating awareness of clinical trials in The field of MDS as well as assisting in The clinical trial recruitment process by utilizing its outreach to
Educational symposia and a bi-annual conference are conducted for several societies and associations such as The american society of hematology and The oncology nursing society. These informative and interactive symposia are aimed at hematologists and nurses working in hematology as well as fellows in hematology, pharmacists working with MDS patients and allied health professionals working in The field of MDS patient care and treatment.
Other
Grants made by MDS Foundation / The Myelodysplastic Syndromes Foundation
Who funds MDS Foundation / The Myelodysplastic Syndromes Foundation
Grants from foundations and other nonprofits
Personnel at MDS Foundation / The Myelodysplastic Syndromes Foundation
| Name | Title | Compensation | Date of data |
|---|
| Tracey A Iraca | Executive Director | $93,661 | 2023-11-14 |
| Janice Butchko | Secretary | $48,741 | 2022-12-31 |
| Stephen D Nimer | Chairman | $0 | 2022-12-31 |
| Sandra Kurtin Anp-C Aocn | Past Treasurer | $0 | 2022-12-31 |
| Susan Hogan Jan -aug | Operating Director | $38,820 | 2017-12-31 |
| ...and 4 more key personnel |
Financials for MDS Foundation / The Myelodysplastic Syndromes Foundation
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $1,558,359 | $2,618,926 | -40.5% |
| Program services | $972,104 | $405,541 | 139.7% |
| Investment income and dividends | $32,321 | $8,487 | 280.8% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $150,269 | $-523,102 | 128.7% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $35,972 | $11,523 | 212.2% |
| Total revenues | $2,749,025 | $2,521,375 | 9% |
Organizations like MDS Foundation / The Myelodysplastic Syndromes Foundation
| Organization | Type | Location | Revenue |
|---|
| Hope and Heroes Children's Cancer Fund | 501(c)(3) | New York, NY | $5,767,020 |
| Lazarex Cancer Foundation | 501(c)(3) | Danville, CA | $3,734,815 |
| Esophageal Cancer Action Network | 501(c)(3) | Stevenson, MD | $805,075 |
| National Ovarian Cancer Coalition (NOCC) | 501(c)(3) | Dallas, TX | $5,153,262 |
| The Keep A Breast Foundation | 501(c)(3) | Yucca Valley, CA | $1,036,707 |
| Lung Cancer Initiative | 501(c)(3) | Raleigh, NC | $1,186,472 |
| Rush to Crush Cancer | 501(c)(3) | Pittsburgh, PA | $919,265 |
| The Women's Breast and Heart Initiative Florida Affiliate | 501(c)(3) | Miami Lakes, FL | $835,850 |
| Live Like Bella | 501(c)(3) | Coral Gables, FL | $2,627,367 |
| Susan G Komen Puerto Rico | 501(c)(3) | San Juan, PR | $1,080,052 |
Data update history
August 8, 2024
Used new vendors
Identified 1 new vendor, including
July 10, 2024
Received grants
Identified 8 new grant, including a grant for $18,000 from Damar Foundation January 19, 2024
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disordersCancer
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingOperates internationallyNational levelFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 4573 S Broad St Suite 150
- Yardville, NJ 08620
- Metro area
- Trenton-Princeton, NJ
- County
- Mercer County, NJ
- Website URL
- mds-foundation.org/Â
- Phone
- (800) 637-0839
IRS details
- EIN
- 22-3283911
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1999
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G30: Cancer
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current - Awaiting Reporting
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0273650
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2025-01-15
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