EIN 27-3025707

Macular Degeneration Association

IRS 501(c) type
501(c)(3)
Num. employees
7
State
Year formed
2010
Most recent tax filings
2022-12-01
Description
The Macular Degeneration Association disseminates research findings and conducts educational programs to cure macular degeneration. It has created a state of the art website with numerous resources for affected individuals, while also offering both in-person and virtual educational programs.
Total revenues
$2,894,097
2022
Total expenses
$2,168,162
2022
Total assets
$4,842,918
2022
Num. employees
7
2022

Program areas at Macular Degeneration Association

The Macular Degeneration Association has created educational in-person programs and virtual educational programs for those that cannot come to a live program. These programs not only provide information for the person that has been affected by macular degeneration or diabetic macular edema but will bring precautionary measures to their family members and helpful information for caregivers. All programs feature experts in the field of retina or optomety, providing information about risk factors, genetic predisposition, proper diagnosis, new treatment options, research information, clinical trials and new drug advances. Participants are given a chance to interact with the doctor and ask questions.
Macular Degeneration Association has created a state of the art website to provide an extensive number of resources and information to help those affected by macular degeneration and additional diseases that can affect macular degeneration. This website includes educational videos that are produced for patients, family members and caregivers. The website is ADA compliant and is accessible to people with vision disabilities. There is also a feature for those that speak Sapnish to convert English to Spanish. We continue to include up to date information on all eye diseases, new treatment options, research information, clinical trials and new drug advances. Our user friendly website provides the user with friendly navigation, accessibility tools and information for patients, professionals, caregivers and families. This website has an average 689,000 hits annually.
The Macular Degenration Association produces newsletters quarterly. The information provided is for those that have age-related macular degeneration, diabetic eye disease, glaucoma and cataracts. The newsletter provides educational information, new research, new drug therapies, clinical trials and treatments. The newsletters go out to 65,000 doctors, patients, families and caregivers. Brochures were designed and provided to doctors to help their patients navigate macular degeneration and find resources that can help. We have a very robust social media following including 17,258 followers on Facebook, 7,905 on Twitter, 1,359 on Linked In and 710 on Pinterest.

Who funds Macular Degeneration Association

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Network for GoodUnrestricted$53,959
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$39,098
National Philanthropic TrustHealth$17,279
...and 52 more grants received totalling $175,595

Personnel at Macular Degeneration Association

NameTitleCompensation
Donna AugerDirector$144,000
Dustin TenneyEmployee$77,424
Lynne HenryAdministrative Director
Linda PattersonTreasurer$65,000
Lawrence HoffheimerChairman of the Board$142,230
...and 1 more key personnel

Financials for Macular Degeneration Association

RevenuesFYE 12/2022
Total grants, contributions, etc.$2,810,422
Program services$0
Investment income and dividends$89,930
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-6,255
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$2,894,097

Form 990s for Macular Degeneration Association

Fiscal year endingDate received by IRSFormPDF link
2022-122023-05-16990View PDF
2021-122022-03-14990View PDF
2020-122021-05-20990View PDF
2019-122021-01-21990View PDF
2018-122019-10-11990View PDF
...and 8 more Form 990s
Data update history
January 2, 2024
Received grants
Identified 5 new grant, including a grant for $10,000 from Ruby Family Foundation
October 25, 2023
Received grants
Identified 2 new grant, including a grant for $10,000 from Gerald and Roberta Franklin Charitable Foundation
August 19, 2023
Received grants
Identified 12 new grant, including a grant for $56,050 from American Endowment Foundation
July 17, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 9, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchNational levelTax deductible donations
General information
Address
5969 Cattleridge Blvd Ste 100
Sarasota, FL 34232
Metro area
North Port-Sarasota-Bradenton, FL
County
Sarasota County, FL
Website URL
macularhope.org/ 
Phone
(941) 870-4399
IRS details
EIN
27-3025707
Fiscal year end
December
Taxreturn type
Form 990
Year formed
2010
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G40: Diseases of Specific Organs
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Central organization
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