EIN 36-2916466

Les Turner ALS Foundation

IRS 501(c) type
501(c)(3)
Num. employees
22
City
Year formed
1977
Most recent tax filings
2022-12-01
Description
The Les Turner ALS Foundation is the only independent publicly supported non-profit organization in the Chicago-area devoted solely to the treatment and elimination of amyotrophic lateral sclerosis (ALS).
Also known as...
Les Turner Amyotrophic Lateral Sclerosis Foundation
Total revenues
$2,660,033
2022
Total expenses
$2,786,124
2022
Total assets
$3,764,134
2022
Num. employees
22
2022

Program areas at Les Turner ALS Foundation

The Foundation currently makes grants to the Les Turner als center at northwestern medicine for als research, the lois insolia als clinic and other als educational and scientific activities. In addition, the Foundation provides personalized support visits, support groups, access to equipment and other program services to people with als and their families. The Foundation offers extensive educational resources to people with als and their families across the country and increases public awareness of the disease througheducational programs and initiatives.

Who funds Les Turner ALS Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Schwab Charitable FundHealth$73,185
James V Insolia FoundationMedical Research$65,000
Circle of Service FoundationMedical Research$60,000
...and 67 more grants received totalling $732,725

Personnel at Les Turner ALS Foundation

NameTitleCompensation
Laura FrevelettiChief Executive Officer
Steve SchapiroDirector of Development$117,000
Lauren WebbDirector of Support Services$108,753
Andrea Pauls BackmanPast Chief Executive Officer$207,170
Joel A SchechterVice Chair$0
...and 8 more key personnel

Financials for Les Turner ALS Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$3,051,751
Program services$0
Investment income and dividends$29,199
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$-554
Net income from fundraising events$-420,363
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$2,660,033

Form 990s for Les Turner ALS Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-06-27990View PDF
2021-122022-08-24990View PDF
2020-122021-06-22990View PDF
2019-122020-08-14990View PDF
2018-122019-09-26990View PDF
...and 10 more Form 990s
Data update history
January 3, 2024
Received grants
Identified 12 new grant, including a grant for $60,000 from Circle of Service Foundation
October 23, 2023
Received grants
Identified 11 new grant, including a grant for $50,000 from The Chicago Community Trust
August 23, 2023
Posted financials
Added Form 990 for fiscal year 2022
August 19, 2023
Updated personnel
Identified 5 new personnel
July 23, 2023
Received grants
Identified 47 new grant, including a grant for $125,000 from Gilbert and Jacqueline R Fern Foundation
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingReceives government fundingEndowed supportGala fundraisersFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
5550 W Touhy Ave 302
Skokie, IL 60077
Metro area
Chicago-Naperville-Elgin, IL-IN-WI
Website URL
lesturnerals.org/ 
Phone
(847) 679-3311
Facebook page
LesTurnerALS 
Twitter profile
@lesturnerals 
IRS details
EIN
36-2916466
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1977
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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