| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| University of Massachusetts | Outreach | 2023-12 | $50,000 |
| Team Joseph | Outreach | 2023-12 | $25,000 |
| Parent Project Muscular Dystrophy (PPMD) | Research | 2023-12 | $10,000 |
| ...and 1 more grant made | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| Fidelity Investments Charitable Gift Fund | 2023-06 | For Grant Recipient's Exempt Purposes | $16,150 |
| Chris Brooke Muscular Dystrophy Foundation | 2023-12 | To Help Fund A Foundation That Donates To Various Muscular Dystrophy Organizations | $12,000 |
| The Stern Family Charitable Trust | 2022-12 | To Support the Mission of JB'S Keys To DMD Which Is To Support the Research, Advocacy, Clinics, and Quality of Life Experiences for Families Affected By DMD. | $10,000 |
| ...and 4 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Elizabeth W Harvey | President | $40,000 | 2024-10-01 |
| Stephen Woelfel | Treasurer | $0 | 2023-12-31 |
| Kelly Honohan | Clerk | $0 | 2023-12-31 |
| Mike Elkas | Finance Chairman | $0 | 2015-12-31 |
| Revenues | FYE 12/2023 |
|---|---|
| Total grants, contributions, etc. | $353,358 |
| Program services | $0 |
| Investment income and dividends | $8,451 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $1,795 |
| Net income from fundraising events | $10,442 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $374,046 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2023-12 | 2024-10-01 | 990 | View PDF |
| 2022-12 | 2023-07-26 | 990 | View PDF |
| 2021-12 | 2022-09-06 | 990 | View PDF |
| 2020-12 | 2021-08-17 | 990 | View PDF |
| 2019-12 | 2020-10-21 | 990 | View PDF |
| ...and 10 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| Midwest Hemophilia Association | 501(c)(3) | Ozark, MO | $269,094 |
| Lone Star Bleeding Disorders Foundation | 501(c)(3) | Houston, TX | $663,733 |
| Angels in Disguise | 501(c)(3) | Louisville, KY | $208,281 |
| Sickle Cell Association of South Louisiana | 501(c)(3) | Baton Rouge, LA | $328,701 |
| The Kirk Gibson Foundation for Parkinson's | 501(c)(3) | Birmingham, MI | $754,564 |
| Daughters Against Alzheimer's | 501(c)(3) | Atlanta, GA | $1,136,478 |
| Cure Tay-Sachs Foundation | 501(c)(3) | Phoenix, AZ | $107,582 |
| Down Syndrome Organization of Southern Nevada | 501(c)(3) | Las Vegas, NV | $786,867 |
| The 22Q Family Foundation | 501(c)(3) | Erie, CO | $146,183 |
| Down Syndrome Diagnosis Network | 501(c)(3) | Stillwater, MN | $636,269 |
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