Program areas at International Pemphigus Pemphigoid Foundation
Patient support and education - The IPPF offers a variety of free patient services to help patients live an active, productive life. These include our Peer Coach program, Patient Education Webinars, local and regional support groups, Find a Doctor map, annual Patient Education Conferences, and educational resources. These are just some of the ways to connect with the pemphigus and pemphigoid (P/P) community.
Research - Before new treatment therapies can be developed, investigators need to better estimate the prevalence of P/P, study their pathophysiology, understand treatment patterns, and assess the burden of these diseases on patients. The IPPF encourages research by conducting our Natural History Study, hosting scientific symposia, periodically offering research grants, and maintaining a library of clinical trial information for researchers and healthcare professionals.
Public awareness and advocacy - The IPPF Biopsies Save Lives program seeks to accelerate diagnosis time of pemphigus and pemphigoid (P/P) patients. Outreach is directed to dental professionals through student and continuing education, who have the unique opportunity to shorten diagnosis times.Advocacy is defined as public support or recommendation for a particular cause. Advocacy is different from lobbying, which looks to influence a particular elected official or legislation. Advocacy can take place on local, state, or federal levels of government. The IPPF mainly advocates for patients at the federal level, but we encourage our community to support grassroots efforts through various umbrella organizations.
Who funds International Pemphigus Pemphigoid Foundation
Grants from foundations and other nonprofits
Personnel at International Pemphigus Pemphigoid Foundation
Name | Title | Compensation | Date of data |
---|
Janet Segall | Founder and Peer Coach | | 2022-08-17 |
Patrick Dunn, Mfa | Mfa Executive Director | | 2022-08-17 |
Becky Strong | Outreach Director | | 2022-08-17 |
Anna Lane | Communications and Marketing Manager | | 2022-08-17 |
Nelly Filippov | Administrative Manager | | 2022-08-17 |
...and 8 more key personnel |
Financials for International Pemphigus Pemphigoid Foundation
Revenues | FYE 12/2022 | FYE 12/2021 | % Change |
---|
Total grants, contributions, etc. | $558,099 | $639,722 | -12.8% |
Program services | $0 | $0 | - |
Investment income and dividends | $123 | $33 | 272.7% |
Tax-exempt bond proceeds | $0 | $0 | - |
Royalty revenue | $0 | $0 | - |
Net rental income | $0 | $0 | - |
Net gain from sale of non-inventory assets | $0 | $0 | - |
Net income from fundraising events | $0 | $0 | - |
Net income from gaming activities | $0 | $0 | - |
Net income from sales of inventory | $0 | $0 | - |
Miscellaneous revenues | $0 | $0 | - |
Total revenues | $558,222 | $639,755 | -12.7% |
Organizations like International Pemphigus Pemphigoid Foundation
Organization | Type | Location | Revenue |
---|
Uplifting Athletes | 501(c)(3) | Doylestown, PA | $1,116,184 |
Pennsylvania Tourette Syndrome Alliance | 501(c)(3) | Hanover, PA | $237,405 |
Epilepsy Foundation of Greater Chicago | 501(c)(3) | Chicago, IL | $2,363,979 |
The Myalgic Encephalomyelitis Action Network | 501(c)(3) | Santa Monica, CA | $709,587 |
Epilepsy Service of SW Florida | 501(c)(3) | Sarasota, FL | $507,487 |
Myasthenia Gravis Foundation of California | 501(c)(3) | Valencia, CA | $143,627 |
The Fibroid Foundation | 501(c)(3) | Bethesda, MD | $563,822 |
Epilepsy Foundation of Texas | 501(c)(3) | Houston, TX | $1,612,999 |
I Am Als | 501(c)(3) | Washington, DC | $1,631,851 |
The Als Association Greater San Diego Chapter | 501(c)(3) | Oceanside, CA | $2,138,341 |
Data update history
January 7, 2024
Posted financials
Added Form 990 for fiscal year 2022
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
August 17, 2022
Updated personnel
Identified 10 new personnel
July 7, 2022
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Political advocacyConducts researchTax deductible donations
General information
- Address
- 915 Highland Pointe Dr Ste 250
- Roseville, CA 95678
- Metro area
- Sacramento-Roseville-Folsom, CA
- Website URL
- pemphigus.org/Â
- Phone
- (770) 714-4684
IRS details
- EIN
- 94-3207871
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1994
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G50: Nerve, Muscle, and Bone Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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