EIN 94-3207871

International Pemphigus Pemphigoid Foundation

IRS 501(c) type
501(c)(3)
Num. employees
8
Year formed
1994
Most recent tax filings
2022-12-01
Description
The International Pemphigus Pemphigoid Foundation focuses on providing medical information, awareness, research, and patient support for an orphan disease. The IPPF Biopsies Save Lives program advocates for public awareness and seeks to accelerate the diagnosis time of pemphigus and pemphigoid (P/P) patients. Research is also encouraged by investigating the prevalence of P/P, their pathophysiology, treatment patterns, and assessing the burden on patients. This is done to develop new treatment therapies. Dental professionals are reached out through student and continuing education programs.
Also known as...
International Pemphigus Pemphigoid Pemphigoid Foundation
Total revenues
$558,222
2022
Total expenses
$434,763
2022
Total assets
$602,948
2022
Num. employees
8
2022

Program areas at International Pemphigus Pemphigoid Foundation

Patient support and education - The IPPF offers a variety of free patient services to help patients live an active, productive life. These include our Peer Coach program, Patient Education Webinars, local and regional support groups, Find a Doctor map, annual Patient Education Conferences, and educational resources. These are just some of the ways to connect with the pemphigus and pemphigoid (P/P) community.
Research - Before new treatment therapies can be developed, investigators need to better estimate the prevalence of P/P, study their pathophysiology, understand treatment patterns, and assess the burden of these diseases on patients. The IPPF encourages research by conducting our Natural History Study, hosting scientific symposia, periodically offering research grants, and maintaining a library of clinical trial information for researchers and healthcare professionals.
Public awareness and advocacy - The IPPF Biopsies Save Lives program seeks to accelerate diagnosis time of pemphigus and pemphigoid (P/P) patients. Outreach is directed to dental professionals through student and continuing education, who have the unique opportunity to shorten diagnosis times.Advocacy is defined as public support or recommendation for a particular cause. Advocacy is different from lobbying, which looks to influence a particular elected official or legislation. Advocacy can take place on local, state, or federal levels of government. The IPPF mainly advocates for patients at the federal level, but we encourage our community to support grassroots efforts through various umbrella organizations.

Who funds International Pemphigus Pemphigoid Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$106,150
Pfizer FoundationMatching Gifts$236

Personnel at International Pemphigus Pemphigoid Foundation

NameTitleCompensation
Janet SegallFounder and Peer Coach
Patrick Dunn, MfaMfa Executive Director
Becky StrongOutreach Director
Anna LaneCommunications and Marketing Manager
Nelly FilippovAdministrative Manager
...and 8 more key personnel

Financials for International Pemphigus Pemphigoid Foundation

RevenuesFYE 12/2022
Total grants, contributions, etc.$558,099
Program services$0
Investment income and dividends$123
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$558,222

Form 990s for International Pemphigus Pemphigoid Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-16990View PDF
2021-122022-11-10990View PDF
2020-122021-10-27990View PDF
2019-122021-02-17990View PDF
2018-122019-07-05990View PDF
...and 9 more Form 990s
Data update history
January 7, 2024
Posted financials
Added Form 990 for fiscal year 2022
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
May 21, 2023
Received grants
Identified 1 new grant, including a grant for $50,000 from Silicon Valley Community Foundation (SVCF)
August 17, 2022
Updated personnel
Identified 10 new personnel
July 7, 2022
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Political advocacyConducts researchTax deductible donations
General information
Address
915 Highland Pointe Dr Ste 250
Roseville, CA 95678
Metro area
Sacramento-Roseville-Folsom, CA
Website URL
pemphigus.org/ 
Phone
(770) 714-4684
IRS details
EIN
94-3207871
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1994
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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