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EIN 52-1298610

International League Against Epilepsy

IRS 501(c) type
501(c)(3)
Num. employees
6
City
Washington
State
District of Columbia
Year formed
1975
Most recent tax filings
2022-12-01
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
Description
International League Against Epilepsy advances and disseminates knowledge about epilepsy through periodic congresses held in different locations. The organization also promotes research, education, and training to improve services and care for patients by preventing, diagnosing and treating epilepsy. Commissions and chapters located around the world function as local affiliates carrying out the mission of the organization.
Total revenues
$4,579,167
2022
Total expenses
$5,131,704
2022
Total assets
$25,182,697
2022
Num. employees
6
2022

Program areas at International League Against Epilepsy

Congresses are periodically held conventions located in differing geographic locations. These are medical and scientific meetings designed to advance the world-wide medical profession in its fight to cure epilepsy.
Publications to educate professionals and others in the field of epilepsy.
Commissions and chapters are located around the world. These chapters function as local affiliates for the International League Against Epilepsy and carry out the mission of the organization locally.

Grants made by International League Against Epilepsy

GranteeGrant descriptionAmount
Case Western Reserve University (CWRU)Educational & Research Support$15,184
Catholic Foreign Mission Society of AmericaCme Development$10,000

Who funds International League Against Epilepsy

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
National Philanthropic TrustHealth$20,000

Personnel at International League Against Epilepsy

NameTitleCompensation
Julie HallBoard Member$0
Helen CrossPresident$0
Roberto CaraballoVice President / Chair , Ilae - Latin America$0
Edward H BertramSecretary General$0
Alla GuekhtTreasurer / Vice President$0
...and 2 more key personnel

Financials for International League Against Epilepsy

RevenuesFYE 12/2022
Total grants, contributions, etc.$88,759
Program services$3,017,638
Investment income and dividends$591,129
Tax-exempt bond proceeds$0
Royalty revenue$1,616,551
Net rental income$0
Net gain from sale of non-inventory assets$-663,357
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$-71,553
Total revenues$4,579,167

Form 990s for International League Against Epilepsy

Fiscal year endingDate received by IRSFormPDF link
2022-122023-11-15990View PDF
2021-122022-11-15990View PDF
2020-122021-11-15990View PDF
2019-122021-03-02990View PDF
2018-122020-02-07990View PDF
...and 9 more Form 990s

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OrganizationLocationRevenue
The Cure Starts NowCincinnati, OH$5,231,630
Charcot-Marie-Tooth Association (CMTA)Glenolden, PA$10,398,940
Women's International Zionist Organization (WIZO)New York, NY$8,135,442
Dravet Syndrome FoundationCherry Hill, NJ$2,515,782
Cure Sanfilippo FoundationColumbia, SC$2,707,445
Myotonic Dystrophy Foundation (MDF)Oakland, CA$2,774,035
LiveLikeLou FoundationOxford, OH$2,796,333
Miles for MigraineJericho, VT$1,808,503
Jar of HopeAsbury Park, NJ$1,670,405
Augies Quest to Cure ALSDenver, CO$3,508,573
Data update history
January 8, 2024
Posted financials
Added Form 990 for fiscal year 2022
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 27, 2023
Updated personnel
Identified 16 new personnel
July 7, 2023
Updated personnel
Identified 1 new personnel
June 30, 2023
Posted financials
Added Form 990 for fiscal year 2020
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthDiseases and disorders
Characteristics
MembershipsConducts researchOperates internationallyCommunity engagement / volunteeringTax deductible donations
General information
Address
1747 Pennsylvania Ave NW 1000
Washington, DC 20006
Metro area
Washington-Arlington-Alexandria, DC-VA-MD-WV
County
District of Columbia, DC
Website URL
ilae.org/ 
Phone
(860) 830-4787
IRS details
EIN
52-1298610
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1975
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G50: Nerve, Muscle, and Bone Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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