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EIN 90-0658125

Huntington's Disease Society of America Group

IRS 501(c) type
501(c)(3)
Num. employees
0
City
New York
State
New York
Year formed
1986
Most recent tax filings
2022-12-01
NTEE code, primary
G80: Specifically Named Diseases
Description
Huntington's Disease Society of America Group is a health and welfare organization with a mission to improve the lives of people and families living with Huntington's Disease. The group provides community outreach by organizing workshops, seminars, and symposiums in collaboration with its network of chapter affiliates and branches throughout the United States. It also offers education through publishing and distributing newsletters, brochures, and science updates to spread awareness about the disease.
Related structure
Huntington's Disease Society of America Group is child organization, under the parent exemption from Huntington's Disease Society of America (HDSA).
Total revenues
$3,567,800
2022
Total expenses
$3,671,274
2022
Total assets
$739,599
2022
Num. employees
0
2022

Program areas at Huntington's Disease Society of America Group

Patient and family services - provides counseling and referral services to patients with Huntington's Disease and their families.
Education - provides information and education through publication and distribution of newsletters, brochures and science updates.
Community outreach - provides workshops, seminars, and symposiums on Huntington's Disease through a network of chapter affiliates and branches throughout the united states.

Personnel at Huntington's Disease Society of America Group

NameTitleCompensation
Louise VetterChief Executive Officer$0
Rosemary ColuccioChief Operations Officer$0
Christopher CosentinoDirector of Marketing and Co$0
Deborah BoydDevelopment Director$0
Debra LoveckyDirector of Education Program$0
...and 8 more key personnel

Financials for Huntington's Disease Society of America Group

RevenuesFYE 12/2022
Total grants, contributions, etc.$3,567,726
Program services$0
Investment income and dividends$0
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$74
Total revenues$3,567,800

Form 990s for Huntington's Disease Society of America Group

Fiscal year endingDate received by IRSFormPDF link
2022-122023-05-16990View PDF
2020-122021-07-20990View PDF
2019-122020-09-10990View PDF
2018-122019-09-10990View PDF
2017-122018-08-13990View PDF
...and 8 more Form 990s

Organizations like Huntington's Disease Society of America Group

OrganizationLocationRevenue
Huntington's Disease Society of America (HDSA)New York, NY$10,709,965
National Psoriasis FoundationPortland, OR$13,390,353
TSC AllianceSilver Spring, MD$8,909,542
United Mitochondrial Disease Foundation (UMDF)Pittsburgh, PA$3,572,403
Alpha-1 Foundation Alpha One FoundationMiami, FL$10,890,084
Arthritis Foundation New England RegionNewton, MA$4,617,772
Arthritis Foundation GeorgiaAtlanta, GA$4,231,904
Beyond CeliacAmbler, PA$2,656,405
Global Lyme AllianceStamford, CT$2,854,709
Arthritis Foundation Upper Midwest RegionSt Paul, MN$2,891,319
Data update history
July 20, 2023
Posted financials
Added Form 990 for fiscal year 2022
July 3, 2023
Updated personnel
Identified 8 new personnel
June 29, 2023
Used new vendors
Identified 1 new vendor, including
June 24, 2023
Updated personnel
Identified 2 new personnel
April 14, 2022
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsChapter / child organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingNational levelCommunity engagement / volunteeringGala fundraisersFundraising races, competitions, and tournamentsTax deductible donationsNo full-time employees
General information
Address
505 Eighth Ave Suite 902
New York, NY 10018
Metro area
New York-Newark-Jersey City, NY-NJ-PA
County
New York County, NY
Website URL
hdsa.org/ 
Phone
(212) 242-1968
IRS details
EIN
90-0658125
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1986
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G80: Specifically Named Diseases
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Child within group exemption
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