Program areas at Hunter's Hope Foundation
Education & awareness - the Foundation strives to broaden public awareness of krabbe disease and other leukodystrophies thus increasing the probability of early detection and treatment.
Research - the Foundation's goal is to support medical/research efforts that will identify new treatments, therapies, and ultimately, a cure for krabbe disease and other leukodystrophies.
Family assistance - the Foundation undertakes to gather and provide current, functional information, and service linkages to families of children with leukodystrophies.the Foundation strives to establish an alliance of Hope that will nourish, affirm, and confront the urgent need for medical, and financial support of family members and those afflicted with leukodystrophies.
Grants made by Hunter's Hope Foundation
Who funds Hunter's Hope Foundation
Grants from foundations and other nonprofits
Personnel at Hunter's Hope Foundation
| Name | Title | Compensation | Date of data |
|---|
| Jacque Waggoner | Chief Executive Officer and Ed | $100,000 | 2025-03-12 |
| Anna Grantham | LCN and NBS Director | | 2025-03-12 |
| Erin Kelly Bean | Digital Media Manager | | 2025-03-12 |
| Laura Schranz | Executive Assistant , Bookkeeper | | 2025-03-12 |
| Melissa Jablonski | Finance Officer | $65,000 | 2023-12-31 |
Financials for Hunter's Hope Foundation
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $1,980,257 | $948,018 | 108.9% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $41,515 | $20,640 | 101.1% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $6,192 | $-8,106 | 176.4% |
| Net income from fundraising events | $0 | $0 | - |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $0 | $0 | - |
| Total revenues | $2,027,964 | $960,552 | 111.1% |
Organizations like Hunter's Hope Foundation
| Organization | Type | Location | Revenue |
|---|
| National Ataxia Foundation Incorporated | 501(c)(3) | Minneapolis, MN | $3,981,625 |
| United Cerebral Palsy of West Alabama | 501(c)(3) | Northport, AL | $2,823,106 |
| International Pemphigus Pemphigoid Foundation | 501(c)(3) | Roseville, CA | $626,051 |
| United Cerebral Palsy | 501(c)(3) | Vienna, VA | $2,223,432 |
| Down Syndrome Association of Greater St Louis | 501(c)(3) | Brentwood, MO | $1,162,034 |
| Down Syndrome Association of Wisconsin | 501(c)(3) | West Allis, WI | $6,693,318 |
| Batten Disease Support and Research Association | 501(c)(3) | Columbus, OH | $746,147 |
| Association for the Severely Handicapped (TASH) | 501(c)(3) | Washington, DC | $849,833 |
| Global Down Syndrome Foundation | 501(c)(3) | Denver, CO | $4,313,796 |
| Sickle Cell Foundation of Palm Beach County and Treasure Coast (SCF) | 501(c)(3) | West Palm Beach, FL | $1,288,368 |
Data update history
August 18, 2024
Posted financials
Added Form 990 for fiscal year 2023
July 31, 2024
Updated personnel
Identified 1 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsHeadquarter / parent organizationsCharities
Issues
HealthDiseases and disorders
Characteristics
Conducts researchTax deductible donationsAccepts online donations
General information
- Address
- 21 Princeton Pl Suite 12
- Orchard Park, NY 14127
- Metro area
- Buffalo-Cheektowaga, NY
- County
- Erie County, NY
- Website URL
- huntershope.org/Â
- Phone
- (716) 667-1200
IRS details
- EIN
- 16-1552315
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1998
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Central organization
California AB-488 details
- AB 488 status
- May Operate or Solicit for Charitable Purposes
- Charity Registration status
- Current
- FTB status revoked
- Not revoked
- AG Registration Number
- CT0262555
- FTB Entity ID
- None yet
- AB 488 data last updated ("as-of") date
- 2025-03-19
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