EIN 56-1273974

Bleeding Disorders Foundation of North Carolina

IRS 501(c) type
501(c)(3)
Num. employees
3
Year formed
1977
Most recent tax filings
2023-06-01
Description
Dedicated to improving the quality of life of persons affected by Bleeding Disorders through advocacy, education, promotion of research and delivery of supportive programs and services.
Also known as...
Hemophilia of North Carolina
Total revenues
$644,892
2023
Total expenses
$580,969
2023
Total assets
$1,084,537
2023
Num. employees
3
2023

Program areas at Bleeding Disorders Foundation of North Carolina

Bleeding Disorders Foundation of nc provides education to help people with Bleeding Disorders avoid debilitating complications and live longer, more active and healthier lives; conducts advocacy initiatives at local and national levels to help ensure access to medical care and equitable insurance reimbursement for all; builds awareness of bleedng Disorders and promotes early diagnosis; advocates and creates awareness for blood safety and helps to fund and promote research toward better treatments and cures.
The Bleeding Disorders Foundation of nc financial assistance program is part of the organization's continuing effort to improve the quality of life of individuals and families affected by Bleeding Disorders. This program provides funds to eligible individuals and families who need assistance with expenses incurred in the care, treatment or prevention of a Bleeding disorder, and/or basic living expenses.
Bleeding Disorders Foundation of nc publishes a quarterly newsletter, the concentrate, that is distributed to members, the medical community and other interested parties. Information in the newsletter contains articles on relevant topics to the Bleeding Disorders community, updates on programs and services and highlights of community members. Based on information received from the membership, the newsletter is their primary source of information. In addition to the newsletter, Bleeding Disorders Foundation of nc publishes flyers with information about upcoming programs and services.

Who funds Bleeding Disorders Foundation of North Carolina

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Hemophilia Federation of America (HFA)Beyond Recreation - Keynote,kinesiotaping, Financial Wellness 101, Pathway To Best Care,$10,000
The Hemophilia Alliance FoundationPromote Hemophilia$8,000
National Bleeding Disorders FoundationState Based Advocacy Coalition Grant$7,500
...and 3 more grants received

Personnel at Bleeding Disorders Foundation of North Carolina

NameTitleCompensation
Charlene CowellExecutive Director$93,232
Genevieve SkinnerAdvocacy Director
Gillian SchultzDirector of Programs$53,045
Steven HumesPresident$0
Kathy RegisterTreasurer$0
...and 7 more key personnel

Financials for Bleeding Disorders Foundation of North Carolina

RevenuesFYE 06/2023
Total grants, contributions, etc.$467,798
Program services$10,000
Investment income and dividends$32,103
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$131,021
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$3,970
Total revenues$644,892

Form 990s for Bleeding Disorders Foundation of North Carolina

Fiscal year endingDate received by IRSFormPDF link
2023-062023-12-13990View PDF
2022-062023-01-12990View PDF
2021-062022-01-10990View PDF
2020-062021-09-02990View PDF
2020-062021-03-02990View PDF
...and 10 more Form 990s
Data update history
February 6, 2024
Posted financials
Added Form 990 for fiscal year 2023
December 23, 2023
Received grants
Identified 6 new grant, including a grant for $10,000 from We Work for Health
November 25, 2023
Posted financials
Added Form 990 for fiscal year 2021
June 20, 2023
Posted financials
Added Form 990 for fiscal year 2022
June 17, 2023
Updated personnel
Identified 3 new personnel
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthHuman servicesDiseases and disorders
Characteristics
Political advocacyConducts researchFundraising eventsPeer-to-peer fundraisingState / local levelReceives government fundingFundraising races, competitions, and tournamentsTax deductible donations
General information
Address
260 Town Hall Dr A
Morrisville, NC 27560
Metro area
Raleigh-Cary, NC
County
Wake County, NC
Website URL
bleedingdisordersnc.org/ 
Phone
(919) 319-0014
IRS details
EIN
56-1273974
Fiscal year end
June
Taxreturn type
Form 990
Year formed
1977
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
G40: Diseases of Specific Organs
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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