Program areas at Hemophilia Foundation of Greater Florida
Financial assistance for individuals with Hemophilia and other blood disorders such as medical assistance for uninsured patients, medic alert, medical helmets and equipment not covered by insurance, holiday food gift certificates for people in need and assistance with basic life support issues due to a crisis.
Public health for persons with Hemophilia, von willebrand and other related hereditary bleeding disorders, their spouse, parents, siblings or other significant family member.
Camp spirit overnight summer camp for children ages 7-17 with Hemophilia or other blood disorders. Family retreat weekend is a fun, educational and informational weekend free of charge for families with bleeding disorders throughout Florida.
Scholarships are available for Florida residents with Hemophilia, von willebrand, and other related herditary bleeding disorders. They are intended to provide financial assistance for recent high school graduates pursuing a post-secondary educaiton at a college, technical or trade school, or through other certification programs. Scholarships will be awarded based on merit, need, community service, and aspirations reflected in an essay. The award will be given directly to the institution the recipient plans to attend.
Who funds Hemophilia Foundation of Greater Florida
Grants from foundations and other nonprofits
Personnel at Hemophilia Foundation of Greater Florida
| Name | Title | Compensation | Date of data |
|---|
| Francine Haynes | Executive Director | $129,432 | 2022-12-31 |
| Pete Vrochopoulos | Board Member | $0 | 2024-04-10 |
| Eileen Gregory | Secretary and Treasurer | $0 | 2024-04-10 |
| Mike Berkman | Vice President | $0 | 2022-12-31 |
| Ronald Sachs | President | | 2017-10-19 |
Financials for Hemophilia Foundation of Greater Florida
| Revenues | FYE 12/2023 | FYE 12/2022 | % Change |
|---|
| Total grants, contributions, etc. | $1,099,304 | $640,630 | 71.6% |
| Program services | $0 | $0 | - |
| Investment income and dividends | $22,324 | $4,243 | 426.1% |
| Tax-exempt bond proceeds | $0 | $0 | - |
| Royalty revenue | $0 | $0 | - |
| Net rental income | $0 | $0 | - |
| Net gain from sale of non-inventory assets | $0 | $0 | - |
| Net income from fundraising events | $0 | $-6,840 | -100% |
| Net income from gaming activities | $0 | $0 | - |
| Net income from sales of inventory | $0 | $0 | - |
| Miscellaneous revenues | $15,511 | $14,800 | 4.8% |
| Total revenues | $1,137,139 | $652,833 | 74.2% |
Organizations like Hemophilia Foundation of Greater Florida
| Organization | Type | Location | Revenue |
|---|
| Down Syndrome Association of Greater St Louis | 501(c)(3) | Saint Louis, MO | $1,150,647 |
| Down Syndrome Association of Central Kentucky | 501(c)(3) | Lexington, KY | $302,049 |
| Down Syndrome Association of Pittsburgh | 501(c)(3) | Pittsburgh, PA | $378,995 |
| Down Syndrome Alliance of the Midlands | 501(c)(3) | Omaha, NE | $439,895 |
| Bleeding Disorders Alliance Illinois | 501(c)(3) | Chicago, IL | $448,700 |
| Hemophilia Foundation of Northern California | 501(c)(3) | Martinez, CA | $515,346 |
| Gateway Hemophilia Association | 501(c)(3) | Saint Louis, MO | $374,624 |
| Pacific Northwest Bleeding Disorders | 501(c)(3) | Corvallis, OR | $603,450 |
| Down Syndrome Association of Houston | 501(c)(3) | Houston, TX | $328,545 |
| Kentucky Hemophilia Foundation | 501(c)(3) | Louisville, KY | $285,400 |
Data update history
April 6, 2024
Used new vendors
Identified 2 new vendors, including , and
July 11, 2023
Posted financials
Added Form 990 for fiscal year 2021
July 5, 2023
Posted financials
Added Form 990 for fiscal year 2022
Nonprofit Types
Grantmaking organizationsDisease research fundraisersDisease-focused nonprofitsCharities
Issues
HealthEducationDiseases and disorders
Characteristics
Conducts researchFundraising eventsPeer-to-peer fundraisingState / local levelCommunity engagement / volunteeringFundraising races, competitions, and tournamentsTax deductible donationsAccepts online donations
General information
- Address
- 1350 Orange Ave 227
- Winter Park, FL 32789
- Metro area
- Orlando-Kissimmee-Sanford, FL
- County
- Orange County, FL
- Website URL
- bleedingdisordersfl.org/Â
- Phone
- (407) 629-0000
IRS details
- EIN
- 59-3418827
- Fiscal year end
- December
- Taxreturn type
- Form 990
- Year formed
- 1996
- Eligible to receive tax-deductible contributions (Pub 78)
- Yes
Categorization
- NTEE code, primary
- G20: Birth Defects and Genetic Diseases
- NAICS code, primary
- 813212: Health and Disease Research Fundraising Organizations
- Parent/child status
- Independent
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