EIN 36-3327001

Hairy Cell Leukemia Foundation

IRS 501(c) type
501(c)(3)
Num. employees
2
Year formed
1984
Most recent tax filings
2023-12-01
NTEE code, primary
Description
"Hairy Cell Leukemia Foundation advances research, provides resources, support networks and grants to improve outcomes for those affected.".
Total revenues
$2,473,634
2023
Total expenses
$1,302,800
2023
Total assets
$3,928,090
2023
Num. employees
2
2023

Program areas at Hairy Cell Leukemia Foundation

Grants to the Ohio state university for registry implementation
Annual conference each fall for doctors, as well as educational webinars and forums for patients throughout the year. Facilitation of regional support networks for patients. Responding to patient inquiries and referrals to hcl centers of excellence. Facilitation of scientific advisory groups and peer-to-peer doctor support. Administrative, editorial and technical support in the preparation and submission of relevant manuscripts.
Grant awards to investigators pursuing research in Hairy Cell Leukemia. Administrative and technical support to investigators. External communication of research and news publications.

Grants made by Hairy Cell Leukemia Foundation

GranteeGrant descriptionAmount
University of Pennsylvania (Penn)Research Grant$187,500
University of San Diego (USD)Research Grant$125,000
Case Western Reserve University (CWRU)Research Grant$62,500

Who funds Hairy Cell Leukemia Foundation

Grants from foundations and other nonprofits
GrantmakerDescriptionAmount
Brian P Friedman Family FoundationGeneral$500,000
Jewish Community Foundation of Greater Metrowest New Jersey (JCF)General Charitable Purposes$20,250
Fidelity Investments Charitable Gift FundFor Grant Recipient's Exempt Purposes$13,400
...and 1 more grant received

Personnel at Hairy Cell Leukemia Foundation

NameTitleCompensation
Anna LambertsonExecutive Director$130,000
Marc StadmauerSecretary$0
Ken JensenTreasurer$0
Adi WeberVice President$0
Keith MarkbreiterPresident$0
...and 2 more key personnel

Financials for Hairy Cell Leukemia Foundation

RevenuesFYE 12/2023
Total grants, contributions, etc.$2,348,464
Program services$0
Investment income and dividends$125,170
Tax-exempt bond proceeds$0
Royalty revenue$0
Net rental income$0
Net gain from sale of non-inventory assets$0
Net income from fundraising events$0
Net income from gaming activities$0
Net income from sales of inventory$0
Miscellaneous revenues$0
Total revenues$2,473,634

Form 990s for Hairy Cell Leukemia Foundation

Fiscal year endingDate received by IRSFormPDF link
2022-122023-09-13990View PDF
2021-122022-09-01990View PDF
2020-122021-09-03990View PDF
2019-122020-11-05990View PDF
2018-122019-11-25990View PDF
...and 8 more Form 990s
Data update history
November 9, 2023
Posted financials
Added Form 990 for fiscal year 2022
November 9, 2023
Updated personnel
Identified 2 new personnel
October 26, 2023
Used new vendors
Identified 1 new vendor, including
September 23, 2023
Received grants
Identified 1 new grant, including a grant for $500,000 from Brian P Friedman Family Foundation
July 18, 2023
Posted financials
Added Form 990 for fiscal year 2021
Nonprofit Types
Grantmaking organizationsDisease research fundraisersMedical research organizationsCharities
Issues
Health
Characteristics
Provides grantsConducts researchOperates internationallyTax deductible donationsAccepts online donations
General information
Address
77 Van Ness Ave PMB 1617 Ste 101
San Francisco, CA 94102
Metro area
San Francisco-Oakland-Berkeley, CA
Website URL
hairycellleukemia.org/ 
Phone
(224) 355-7201
IRS details
EIN
36-3327001
Fiscal year end
December
Taxreturn type
Form 990
Year formed
1984
Eligible to receive tax-deductible contributions (Pub 78)
Yes
Categorization
NTEE code, primary
H30: Cancer Research
NAICS code, primary
813212: Health and Disease Research Fundraising Organizations
Parent/child status
Independent
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